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Femoral Varus Osteotomy

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  • Doug Standing/Britta de Leyer
    Hi everyone, I brought my daughter Kristen to see the orthopedic surgeon just for a follow-up visit and after reviewing her X-ray he told me she needed surgery
    Message 1 of 4 , Mar 19, 2003
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      Hi everyone,
      I brought my daughter Kristen to see the orthopedic surgeon just for a follow-up visit and after reviewing her X-ray he told me she needed surgery on her right hip because the femoral head is partially out of the socket. It took me completely by surprise so I didn't know what to ask him. He did say there was nothing else that could be done and if it wasn't done, she'll have pain as an adult. He gave me a pamphlet which said the child must be in hospital for 3 to 6 weeks after the surgery. It's called femoral varus osteotomy. Has anyone's child had this surgery? I really need to know more about it because it seems to be fairly major.

      Britta mom to Kristen, 28 months, severe spastic/athetoid quad, cortical visual impairment, seizure disorder, g-tube fed


      [Non-text portions of this message have been removed]
    • debra Marasco-McNulty
      My son is now 26 and at the age of 9 had hip release surgery. His legs were becoming scissored and the right hip joint was out of socket; they cut the right
      Message 2 of 4 , Mar 21, 2003
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        My son is now 26 and at the age of 9 had "hip release"
        surgery. His legs were becoming scissored and the
        right hip joint was out of socket; they cut the right
        femur bone and put in a plate over the bone. Then he
        was in a "spiked cast" for 6 weeks, this was a cast
        from hip to toe with a bar to keep the legs spread. I
        don't know if the surgery you are contemplating is a
        new variation on this surgery. Now He is Frog legged
        which for hygiene is better than scissored and easier
        to position in equipment. I was told that without the
        surgery that he could develope hip joint arthritis.
        My son also has a gtube and was diagnosed with
        cortical blindness. That was until he was 21 and had
        been denied vision services through the schools, then
        they finally gave him the vision diagnosis of
        nearsighted with a stigmatism. There is an eye
        specialist in Sacramento California named Dr. Fong; he
        says that a diagnosis of cortical blindness is just a
        blanket term that means "we don't know how to test or
        we do not have the time to test".

        Debra Mc- debraphp@...
        --- Doug Standing/Britta de Leyer
        <deleyer@...> wrote:
        > Hi everyone,
        > I brought my daughter Kristen to see the orthopedic
        > surgeon just for a follow-up visit and after
        > reviewing her X-ray he told me she needed surgery on
        > her right hip because the femoral head is partially
        > out of the socket. It took me completely by
        > surprise so I didn't know what to ask him. He did
        > say there was nothing else that could be done and if
        > it wasn't done, she'll have pain as an adult. He
        > gave me a pamphlet which said the child must be in
        > hospital for 3 to 6 weeks after the surgery. It's
        > called femoral varus osteotomy. Has anyone's child
        > had this surgery? I really need to know more about
        > it because it seems to be fairly major.
        >
        > Britta mom to Kristen, 28 months, severe
        > spastic/athetoid quad, cortical visual impairment,
        > seizure disorder, g-tube fed
        >
        >
        > [Non-text portions of this message have been
        > removed]
        >
        >


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      • Doug Standing/Britta de Leyer
        Hi Debra, it sounds like our children have alot in common although I m just beginning with her. The hip release sounds the same as what is recommended for
        Message 3 of 4 , Mar 21, 2003
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          Hi Debra, it sounds like our children have alot in common although I'm just beginning with her. The "hip release" sounds the same as what is recommended for my daughter. She also will be put in a cast but the pamphlet says it will be cut down the sides 5 to 10 days after surgery and used as night splints to maintain range of motion. The surgeon said her one leg will be a bit shorter than the other. Your son was older when he got it done but I'm wondering how he coped? Does it bother him at all now or can't you tell?
          My daughter was diagnosed with the cortical visual impairment at 6 months and the opthamologist said cortical blindness was another term they used to call it but the child is not blind so it wasn't really suitable. Kristen is farsighted and was prescribed glasses recently which she seems to enjoy wearing but we have no idea how much it is helping her. We have the Canadian Institute of the Blind (CNIB) here in Canada which offers services and they have an OT that works for them who has given us some help. And I'm hoping the school system when she enters it will provide proper help as well.

          Britta
          ----- Original Message -----
          From: debra Marasco-McNulty
          To: cerebralpalsyclub@yahoogroups.com
          Sent: Friday, March 21, 2003 4:24 PM
          Subject: Re: [CEREBRAL PALSY CLUB] Femoral Varus Osteotomy


          My son is now 26 and at the age of 9 had "hip release"
          surgery. His legs were becoming scissored and the
          right hip joint was out of socket; they cut the right
          femur bone and put in a plate over the bone. Then he
          was in a "spiked cast" for 6 weeks, this was a cast
          from hip to toe with a bar to keep the legs spread. I
          don't know if the surgery you are contemplating is a
          new variation on this surgery. Now He is Frog legged
          which for hygiene is better than scissored and easier
          to position in equipment. I was told that without the
          surgery that he could develope hip joint arthritis.
          My son also has a gtube and was diagnosed with
          cortical blindness. That was until he was 21 and had
          been denied vision services through the schools, then
          they finally gave him the vision diagnosis of
          nearsighted with a stigmatism. There is an eye
          specialist in Sacramento California named Dr. Fong; he
          says that a diagnosis of cortical blindness is just a
          blanket term that means "we don't know how to test or
          we do not have the time to test".

          Debra Mc- debraphp@...
          --- Doug Standing/Britta de Leyer
          <deleyer@...> wrote:
          > Hi everyone,
          > I brought my daughter Kristen to see the orthopedic
          > surgeon just for a follow-up visit and after
          > reviewing her X-ray he told me she needed surgery on
          > her right hip because the femoral head is partially
          > out of the socket. It took me completely by
          > surprise so I didn't know what to ask him. He did
          > say there was nothing else that could be done and if
          > it wasn't done, she'll have pain as an adult. He
          > gave me a pamphlet which said the child must be in
          > hospital for 3 to 6 weeks after the surgery. It's
          > called femoral varus osteotomy. Has anyone's child
          > had this surgery? I really need to know more about
          > it because it seems to be fairly major.
          >
          > Britta mom to Kristen, 28 months, severe
          > spastic/athetoid quad, cortical visual impairment,
          > seizure disorder, g-tube fed
          >
          >
          > [Non-text portions of this message have been
          > removed]
          >
          >


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          [Non-text portions of this message have been removed]
        • debra Marasco-McNulty
          Right now Jason seems like the happy guy. And even a few days after the surgery he was smiling. It took a while but eventually he started kicking his legs
          Message 4 of 4 , Mar 25, 2003
          • 0 Attachment
            Right now Jason seems like the happy guy. And even a
            few days after the surgery he was smiling. It took a
            while but eventually he started kicking his legs
            again. The problem I ran into was since he was bigger,
            they said he would have to be in a nursing facility so
            that he would be turned at regular intervals so he
            would not develope decubidous sores (bed sores) under
            his cast. Guess what, he did anyway, right on he
            tailbone, and I discovered it, they hadn't found it
            yet. That was the long hospital stay, 1 month, but now
            I have found that I am expert at decubs now, what a
            miserable way to learn. I kept he entertained with
            whatever I could, mainly he ejoyed company. He also
            enjoys TV, and has his favorite shows. He loves to
            flirt. I stimulate him in any way possible, with
            lights etc., but TV has been a wonderful thing. Xena,
            warrior princess is a favorite, Days of Our Lives
            (soap opera, a fav since he was 18), Jay Leno, dating
            shows, operas, female figure skating and tennis, and
            martial arts movies. (also Eastwood's Good,Bad,& Ugly
            along with Ammadeus) very eclectic tastes. During
            hospital stays a couple of times churches sent in
            volunteers to read to and talk to him. Friend of mine
            have also used scouting and fraternal organizations.
            All the best to your family and if I can be of any
            assistance or information please let me know. Music
            is a big one for us too, and it is possible that a
            switch can be hooked up to devices that she can
            activate with a slight push of the hand, head, or
            foot.
            Debra

            --- Doug Standing/Britta de Leyer
            <deleyer@...> wrote:
            > Hi Debra, it sounds like our children have alot in
            > common although I'm just beginning with her. The
            > "hip release" sounds the same as what is recommended
            > for my daughter. She also will be put in a cast but
            > the pamphlet says it will be cut down the sides 5 to
            > 10 days after surgery and used as night splints to
            > maintain range of motion. The surgeon said her one
            > leg will be a bit shorter than the other. Your son
            > was older when he got it done but I'm wondering how
            > he coped? Does it bother him at all now or can't
            > you tell?
            > My daughter was diagnosed with the cortical visual
            > impairment at 6 months and the opthamologist said
            > cortical blindness was another term they used to
            > call it but the child is not blind so it wasn't
            > really suitable. Kristen is farsighted and was
            > prescribed glasses recently which she seems to enjoy
            > wearing but we have no idea how much it is helping
            > her. We have the Canadian Institute of the Blind
            > (CNIB) here in Canada which offers services and they
            > have an OT that works for them who has given us some
            > help. And I'm hoping the school system when she
            > enters it will provide proper help as well.
            >
            > Britta
            > ----- Original Message -----
            > From: debra Marasco-McNulty
            > To: cerebralpalsyclub@yahoogroups.com
            > Sent: Friday, March 21, 2003 4:24 PM
            > Subject: Re: [CEREBRAL PALSY CLUB] Femoral Varus
            > Osteotomy
            >
            >
            > My son is now 26 and at the age of 9 had "hip
            > release"
            > surgery. His legs were becoming scissored and the
            > right hip joint was out of socket; they cut the
            > right
            > femur bone and put in a plate over the bone. Then
            > he
            > was in a "spiked cast" for 6 weeks, this was a
            > cast
            > from hip to toe with a bar to keep the legs
            > spread. I
            > don't know if the surgery you are contemplating is
            > a
            > new variation on this surgery. Now He is Frog
            > legged
            > which for hygiene is better than scissored and
            > easier
            > to position in equipment. I was told that without
            > the
            > surgery that he could develope hip joint
            > arthritis.
            > My son also has a gtube and was diagnosed with
            > cortical blindness. That was until he was 21 and
            > had
            > been denied vision services through the schools,
            > then
            > they finally gave him the vision diagnosis of
            > nearsighted with a stigmatism. There is an eye
            > specialist in Sacramento California named Dr.
            > Fong; he
            > says that a diagnosis of cortical blindness is
            > just a
            > blanket term that means "we don't know how to test
            > or
            > we do not have the time to test".
            >
            > Debra Mc- debraphp@...
            > --- Doug Standing/Britta de Leyer
            > <deleyer@...> wrote:
            > > Hi everyone,
            > > I brought my daughter Kristen to see the
            > orthopedic
            > > surgeon just for a follow-up visit and after
            > > reviewing her X-ray he told me she needed
            > surgery on
            > > her right hip because the femoral head is
            > partially
            > > out of the socket. It took me completely by
            > > surprise so I didn't know what to ask him. He
            > did
            > > say there was nothing else that could be done
            > and if
            > > it wasn't done, she'll have pain as an adult.
            > He
            > > gave me a pamphlet which said the child must be
            > in
            > > hospital for 3 to 6 weeks after the surgery.
            > It's
            > > called femoral varus osteotomy. Has anyone's
            > child
            > > had this surgery? I really need to know more
            > about
            > > it because it seems to be fairly major.
            > >
            > > Britta mom to Kristen, 28 months, severe
            > > spastic/athetoid quad, cortical visual
            > impairment,
            > > seizure disorder, g-tube fed
            > >
            > >
            > > [Non-text portions of this message have been
            > > removed]
            > >
            > >
            >
            >
            > __________________________________________________
            > Do you Yahoo!?
            > Yahoo! Platinum - Watch CBS' NCAA March Madness,
            > live on your desktop!
            > http://platinum.yahoo.com
            >
            > Yahoo! Groups Sponsor
            > ADVERTISEMENT
            >
            >
            >
            >
            > To unsubscribe from this group, send an email to:
            > cerebralpalsyclub-unsubscribe@yahoogroups.com
            >
            >
            >
            > Your use of Yahoo! Groups is subject to the Yahoo!
            > Terms of Service.
            >
            >
            >
            > [Non-text portions of this message have been
            > removed]
            >
            >


            __________________________________________________
            Do you Yahoo!?
            Yahoo! Platinum - Watch CBS' NCAA March Madness, live on your desktop!
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