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DTR DENIED TO BRING DYNAVOX TO SCHOOL

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  • liliocat
    I have a 5 yr old dtr who has Spastic Quad. CP and Cortical Visual Impairment. She attends regular kindergarten and half a day in Developmental/Sp Ed. I
    Message 1 of 4 , Sep 26, 2009
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      I have a 5 yr old dtr who has Spastic Quad. CP and Cortical Visual Impairment. She attends regular kindergarten and half a day in Developmental/Sp Ed.

      I recently got the Dynavox Eyemax for her because of lack of progress from the Assistive Technology specialist at school. She told me to wait two years and they will find the right device for her. Instead, I got a ST evaluation and obtained the Dynavox.

      I asked the school if we could bring it to class, but they stated no in the ARD meeting. The following reasons given were: "It is too prohibitive...takes to long to set up...., and that my daughter "needs skills" to use any device. Despite the literature review from ASHA (Association of Speech and Hearing), they refused to listen to me. In fact, I reported data from using the switches they were supposed to try in school last year (but it was never in her IEP). There was a 20% success rate using the switches that attached to her wheelchair and utilizing software on a computer. I tabled the ARD and it is rescheduled for this Monday.

      Please advise. If your child is using the Dynavox at school, please give me the name of the school, school district, city and state. Do you know an expert that could help me testify or assist me?

      Thanks,
      Mother in TX
    • onebizzemommy@yahoo.com
      What is cortical impairment? I have a 1 year old. With hypotonic cp. He has visual stimulation difficulties. I was wondering if it might progress into that?
      Message 2 of 4 , Sep 26, 2009
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        What is cortical impairment? I have a 1 year old. With hypotonic cp. He has visual stimulation difficulties. I was wondering if it might progress into that? Can you help give me more info. Thank you
        Sent on the Sprint� Now Network from my BlackBerry�

        -----Original Message-----
        From: "liliocat" <liliocat@...>

        Date: Sun, 27 Sep 2009 05:58:14
        To: <cerebralpalsyclub@yahoogroups.com>
        Subject: [CEREBRAL PALSY CLUB] DTR DENIED TO BRING DYNAVOX TO SCHOOL


        I have a 5 yr old dtr who has Spastic Quad. CP and Cortical Visual Impairment. She attends regular kindergarten and half a day in Developmental/Sp Ed.

        I recently got the Dynavox Eyemax for her because of lack of progress from the Assistive Technology specialist at school. She told me to wait two years and they will find the right device for her. Instead, I got a ST evaluation and obtained the Dynavox.

        I asked the school if we could bring it to class, but they stated no in the ARD meeting. The following reasons given were: "It is too prohibitive...takes to long to set up...., and that my daughter "needs skills" to use any device. Despite the literature review from ASHA (Association of Speech and Hearing), they refused to listen to me. In fact, I reported data from using the switches they were supposed to try in school last year (but it was never in her IEP). There was a 20% success rate using the switches that attached to her wheelchair and utilizing software on a computer. I tabled the ARD and it is rescheduled for this Monday.

        Please advise. If your child is using the Dynavox at school, please give me the name of the school, school district, city and state. Do you know an expert that could help me testify or assist me?

        Thanks,
        Mother in TX




        [Non-text portions of this message have been removed]
      • liliocat
        Cortical Visual Impairment/Delay or Cortical Blindness can be described as persons seeing through swiss cheese. An experienced pediatric opthamologist would
        Message 3 of 4 , Sep 27, 2009
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          Cortical Visual Impairment/Delay or Cortical Blindness can be described as persons seeing through "swiss cheese." An experienced pediatric opthamologist would be able to detect this condition. I have suspected this from the vague diagnosis from a regular opthamologist saying that my dtr was legally blind. When you search for a pedi opthamologist you need to ask if they have patients with CVI or have experience with it.

          The positive thing about this condition is that they child's vision continues to heal and improve until about age 8. Do an internet search as that would give you more factual information.

          In my dtr's case, she was born at 27 weeks and besides the usual respiratory distress, she had Retinopathy of Prematurity, a grade 1-2. It was treated with one laser surgery while in the NICU. Because of the other complications my dtr had, she suffered a stroke and it caused her right eye to have a pale optic nerve. When she was about 1.5-2 yrs old, she was diagnosed with CVI, at TX Children's Hospital.

          I hope that helps...
          Alma


          --- In cerebralpalsyclub@yahoogroups.com, onebizzemommy@... wrote:
          >
          > What is cortical impairment? I have a 1 year old. With hypotonic cp. He has visual stimulation difficulties. I was wondering if it might progress into that? Can you help give me more info. Thank you
          > Sent on the Sprint® Now Network from my BlackBerry®
          >
          > -----Original Message-----
          > From: "liliocat" <liliocat@...>
          >
          > Date: Sun, 27 Sep 2009 05:58:14
          > To: <cerebralpalsyclub@yahoogroups.com>
          > Subject: [CEREBRAL PALSY CLUB] DTR DENIED TO BRING DYNAVOX TO SCHOOL
          >
          >
          > I have a 5 yr old dtr who has Spastic Quad. CP and Cortical Visual Impairment. She attends regular kindergarten and half a day in Developmental/Sp Ed.
          >
          > I recently got the Dynavox Eyemax for her because of lack of progress from the Assistive Technology specialist at school. She told me to wait two years and they will find the right device for her. Instead, I got a ST evaluation and obtained the Dynavox.
          >
          > I asked the school if we could bring it to class, but they stated no in the ARD meeting. The following reasons given were: "It is too prohibitive...takes to long to set up...., and that my daughter "needs skills" to use any device. Despite the literature review from ASHA (Association of Speech and Hearing), they refused to listen to me. In fact, I reported data from using the switches they were supposed to try in school last year (but it was never in her IEP). There was a 20% success rate using the switches that attached to her wheelchair and utilizing software on a computer. I tabled the ARD and it is rescheduled for this Monday.
          >
          > Please advise. If your child is using the Dynavox at school, please give me the name of the school, school district, city and state. Do you know an expert that could help me testify or assist me?
          >
          > Thanks,
          > Mother in TX
          >
          >
          >
          >
          > [Non-text portions of this message have been removed]
          >
        • onebizzemommy@yahoo.com
          Did your dtr at 1 years old have trouble looking at you? My son can look really well at objects and toys but not at faces. He is very social and interacts well
          Message 4 of 4 , Sep 27, 2009
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            Did your dtr at 1 years old have trouble looking at you? My son can look really well at objects and toys but not at faces. He is very social and interacts well with siblings. We took him to a ped opthamologist in dallas tx and she said his vision is fine we are confused. He starts to look at us and then turns away like he's over stimulated. Does any of this sound familar to you? Tabatha
            Sent on the Sprint� Now Network from my BlackBerry�

            -----Original Message-----
            From: "liliocat" <liliocat@...>

            Date: Mon, 28 Sep 2009 03:46:24
            To: <cerebralpalsyclub@yahoogroups.com>
            Subject: Re: [CEREBRAL PALSY CLUB] DTR DENIED TO BRING DYNAVOX TO SCHOOL


            Cortical Visual Impairment/Delay or Cortical Blindness can be described as persons seeing through "swiss cheese." An experienced pediatric opthamologist would be able to detect this condition. I have suspected this from the vague diagnosis from a regular opthamologist saying that my dtr was legally blind. When you search for a pedi opthamologist you need to ask if they have patients with CVI or have experience with it.

            The positive thing about this condition is that they child's vision continues to heal and improve until about age 8. Do an internet search as that would give you more factual information.

            In my dtr's case, she was born at 27 weeks and besides the usual respiratory distress, she had Retinopathy of Prematurity, a grade 1-2. It was treated with one laser surgery while in the NICU. Because of the other complications my dtr had, she suffered a stroke and it caused her right eye to have a pale optic nerve. When she was about 1.5-2 yrs old, she was diagnosed with CVI, at TX Children's Hospital.

            I hope that helps...
            Alma


            --- In cerebralpalsyclub@yahoogroups.com, onebizzemommy@... wrote:
            >
            > What is cortical impairment? I have a 1 year old. With hypotonic cp. He has visual stimulation difficulties. I was wondering if it might progress into that? Can you help give me more info. Thank you
            > Sent on the Sprint� Now Network from my BlackBerry�
            >
            > -----Original Message-----
            > From: "liliocat" <liliocat@...>
            >
            > Date: Sun, 27 Sep 2009 05:58:14
            > To: <cerebralpalsyclub@yahoogroups.com>
            > Subject: [CEREBRAL PALSY CLUB] DTR DENIED TO BRING DYNAVOX TO SCHOOL
            >
            >
            > I have a 5 yr old dtr who has Spastic Quad. CP and Cortical Visual Impairment. She attends regular kindergarten and half a day in Developmental/Sp Ed.
            >
            > I recently got the Dynavox Eyemax for her because of lack of progress from the Assistive Technology specialist at school. She told me to wait two years and they will find the right device for her. Instead, I got a ST evaluation and obtained the Dynavox.
            >
            > I asked the school if we could bring it to class, but they stated no in the ARD meeting. The following reasons given were: "It is too prohibitive...takes to long to set up...., and that my daughter "needs skills" to use any device. Despite the literature review from ASHA (Association of Speech and Hearing), they refused to listen to me. In fact, I reported data from using the switches they were supposed to try in school last year (but it was never in her IEP). There was a 20% success rate using the switches that attached to her wheelchair and utilizing software on a computer. I tabled the ARD and it is rescheduled for this Monday.
            >
            > Please advise. If your child is using the Dynavox at school, please give me the name of the school, school district, city and state. Do you know an expert that could help me testify or assist me?
            >
            > Thanks,
            > Mother in TX
            >
            >
            >
            >
            > [Non-text portions of this message have been removed]
            >





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