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Re: [CEREBRAL PALSY CLUB] Advice!!

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  • Nancy Braddock
    my daughter has an appointment in grand rapids this wednesday 10/1 to get her son evaluated. maybe you two can meet. it is along way to travel each day, but
    Message 1 of 9 , Sep 29, 2008
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      my daughter has an appointment in grand rapids this wednesday 10/1 to get her son evaluated. maybe you two can meet. it is along way to travel each day, but she is a very determined mother. thanks for the info.



      ----- Original Message ----
      From: Suzanne Esterline <suzanneesterline@...>
      To: cerebralpalsyclub@yahoogroups.com
      Sent: Thursday, September 18, 2008 8:09:42 PM
      Subject: Re: [CEREBRAL PALSY CLUB] Advice!!


      My daughter can not walk, crawl, sit or stand indepently either. But we are doing this awesome program in Grand Rapids MI. It is conductive education..  http://www.aquinas edu/clc/index. html This is there website. They usually are pretty full each month so you need to fill out the application and if you can come visit it or send in a tape of your child to get them accepted. There are so many neat families up here that have to go through the same thing we all go through. If you want or need any more information feel free to contact me. Good luck
       
      Suzanne

      ----- Original Message ----
      From: Nancy Braddock <braddocknancy@ yahoo.com>
      To: cerebralpalsyclub@ yahoogroups. com
      Sent: Thursday, September 18, 2008 1:52:02 PM
      Subject: Re: [CEREBRAL PALSY CLUB] Advice!!

      hi my name is Nancy and I have a cp grandson who just turned 2yrs in August. he has been going to pt since he was 6 months old. he cannot crawl ( he pulls himself around with his arms) he does sit up. he stands with braces and a walker and can take  a few steps, he doesn't have strength or muscle in the hip area. his left arm  is good but his right arm is bent inward he can use it but he prefers his left.  right now my daughter is involved in a type of therpy that they have put a cast on his left (good) arm and are forcing him to use is right arm.  this therapy is for only 3 weeks it is through the university of michigan. we have looked every where for any type of therapy or new things that work for cerebal palsy kids. he has done wonderful so far. he is a very happy baby with 2 brothers ( 1 is younger) and 1 sister that play and work with him. my daughter has been very busy taking him to therapy 3 somettimes 4 times a week.
      we have been looking for some kind of support group in our area that involves cp patients and are amazed that we cannot find any. (lower michigan / northern ohio)  

      ----- Original Message ----
      From: lbeinhauer <lbeinhauer@ yahoo. com>
      To: cerebralpalsyclub@ yahoogroups. com
      Sent: Friday, September 5, 2008 2:31:08 PM
      Subject: [CEREBRAL PALSY CLUB] Advice!!

      Hi,

      My name is Linda and I have a daughter that is three years old that was
      diagnosed with mild cerebal palsey-spastic diplegia. She has been
      receiving p.t. every since she turned one. Her dad and I continue to
      work with her. She has not progressed in the past year. She cannot
      stand independently and she cannot walk without a gait trainer. I was
      wondering if anyone has a similar story to mine that wouldn't mind
      sharing it with me so I can have better of an outlook!

      Thanks,
      Linda

      [Non-text portions of this message have been removed]

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      [Non-text portions of this message have been removed]
    • Nancy Braddock
      my daughter just got back from grand rapids, they want her son in get into the study but the opening isn t until january. the only thing that concerns us is
      Message 2 of 9 , Oct 1, 2008
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        my daughter just got back from grand rapids, they want her son in get into the study but the opening isn't until january. the only thing that concerns us is the weather, that will be  right in the middle of winter. so i guess we will have to see how it goes..thanks again



        ----- Original Message ----
        From: Nancy Braddock <braddocknancy@...>
        To: cerebralpalsyclub@yahoogroups.com
        Sent: Monday, September 29, 2008 6:34:30 PM
        Subject: Re: [CEREBRAL PALSY CLUB] Advice!!


        my daughter has an appointment in grand rapids this wednesday 10/1 to get her son evaluated. maybe you two can meet. it is along way to travel each day, but she is a very determined mother. thanks for the info.

        ----- Original Message ----
        From: Suzanne Esterline <suzanneesterline@ yahoo.com>
        To: cerebralpalsyclub@ yahoogroups. com
        Sent: Thursday, September 18, 2008 8:09:42 PM
        Subject: Re: [CEREBRAL PALSY CLUB] Advice!!

        My daughter can not walk, crawl, sit or stand indepently either. But we are doing this awesome program in Grand Rapids MI. It is conductive education..  http://www.aquinas edu/clc/index. html This is there website. They usually are pretty full each month so you need to fill out the application and if you can come visit it or send in a tape of your child to get them accepted. There are so many neat families up here that have to go through the same thing we all go through. If you want or need any more information feel free to contact me. Good luck
         
        Suzanne

        ----- Original Message ----
        From: Nancy Braddock <braddocknancy@ yahoo.com>
        To: cerebralpalsyclub@ yahoogroups. com
        Sent: Thursday, September 18, 2008 1:52:02 PM
        Subject: Re: [CEREBRAL PALSY CLUB] Advice!!

        hi my name is Nancy and I have a cp grandson who just turned 2yrs in August. he has been going to pt since he was 6 months old. he cannot crawl ( he pulls himself around with his arms) he does sit up. he stands with braces and a walker and can take  a few steps, he doesn't have strength or muscle in the hip area. his left arm  is good but his right arm is bent inward he can use it but he prefers his left.  right now my daughter is involved in a type of therpy that they have put a cast on his left (good) arm and are forcing him to use is right arm.  this therapy is for only 3 weeks it is through the university of michigan. we have looked every where for any type of therapy or new things that work for cerebal palsy kids. he has done wonderful so far. he is a very happy baby with 2 brothers ( 1 is younger) and 1 sister that play and work with him. my daughter has been very busy taking him to therapy 3 somettimes 4 times a week.
        we have been looking for some kind of support group in our area that involves cp patients and are amazed that we cannot find any. (lower michigan / northern ohio)  

        ----- Original Message ----
        From: lbeinhauer <lbeinhauer@ yahoo. com>
        To: cerebralpalsyclub@ yahoogroups. com
        Sent: Friday, September 5, 2008 2:31:08 PM
        Subject: [CEREBRAL PALSY CLUB] Advice!!

        Hi,

        My name is Linda and I have a daughter that is three years old that was
        diagnosed with mild cerebal palsey-spastic diplegia. She has been
        receiving p.t. every since she turned one.. Her dad and I continue to
        work with her. She has not progressed in the past year. She cannot
        stand independently and she cannot walk without a gait trainer. I was
        wondering if anyone has a similar story to mine that wouldn't mind
        sharing it with me so I can have better of an outlook!

        Thanks,
        Linda

        [Non-text portions of this message have been removed]

        [Non-text portions of this message have been removed]

        [Non-text portions of this message have been removed]






        [Non-text portions of this message have been removed]
      • Suzanne Esterline
        Well we never did the study but I know of a few families that have and then they end up coming for the school year and paying for it independently. Which is
        Message 3 of 9 , Oct 1, 2008
        • 0 Attachment
          Well we never did the study but I know of a few families that have and then they end up coming for the school year and paying for it independently. Which is what I do. Was her appt this afternoon? I think I was at the school when she was there. But did not see them or see them. Keep me posted.
           
          Suzanne



          ----- Original Message ----
          From: Nancy Braddock <braddocknancy@...>
          To: cerebralpalsyclub@yahoogroups.com
          Sent: Wednesday, October 1, 2008 5:38:23 PM
          Subject: Re: [CEREBRAL PALSY CLUB] Advice!!


          my daughter just got back from grand rapids, they want her son in get into the study but the opening isn't until january. the only thing that concerns us is the weather, that will be  right in the middle of winter. so i guess we will have to see how it goes..thanks again

          ----- Original Message ----
          From: Nancy Braddock <braddocknancy@ yahoo.com>
          To: cerebralpalsyclub@ yahoogroups. com
          Sent: Monday, September 29, 2008 6:34:30 PM
          Subject: Re: [CEREBRAL PALSY CLUB] Advice!!

          my daughter has an appointment in grand rapids this wednesday 10/1 to get her son evaluated. maybe you two can meet. it is along way to travel each day, but she is a very determined mother. thanks for the info.

          ----- Original Message ----
          From: Suzanne Esterline <suzanneesterline@ yahoo.com>
          To: cerebralpalsyclub@ yahoogroups. com
          Sent: Thursday, September 18, 2008 8:09:42 PM
          Subject: Re: [CEREBRAL PALSY CLUB] Advice!!

          My daughter can not walk, crawl, sit or stand indepently either. But we are doing this awesome program in Grand Rapids MI. It is conductive education..  http://www.aquinas edu/clc/index. html This is there website. They usually are pretty full each month so you need to fill out the application and if you can come visit it or send in a tape of your child to get them accepted. There are so many neat families up here that have to go through the same thing we all go through. If you want or need any more information feel free to contact me. Good luck
           
          Suzanne

          ----- Original Message ----
          From: Nancy Braddock <braddocknancy@ yahoo.com>
          To: cerebralpalsyclub@ yahoogroups. com
          Sent: Thursday, September 18, 2008 1:52:02 PM
          Subject: Re: [CEREBRAL PALSY CLUB] Advice!!

          hi my name is Nancy and I have a cp grandson who just turned 2yrs in August. he has been going to pt since he was 6 months old. he cannot crawl ( he pulls himself around with his arms) he does sit up. he stands with braces and a walker and can take  a few steps, he doesn't have strength or muscle in the hip area. his left arm  is good but his right arm is bent inward he can use it but he prefers his left.  right now my daughter is involved in a type of therpy that they have put a cast on his left (good) arm and are forcing him to use is right arm.  this therapy is for only 3 weeks it is through the university of michigan. we have looked every where for any type of therapy or new things that work for cerebal palsy kids. he has done wonderful so far. he is a very happy baby with 2 brothers ( 1 is younger) and 1 sister that play and work with him. my daughter has been very busy taking him to therapy 3 somettimes 4 times a week.
          we have been looking for some kind of support group in our area that involves cp patients and are amazed that we cannot find any. (lower michigan / northern ohio)  

          ----- Original Message ----
          From: lbeinhauer <lbeinhauer@ yahoo. com>
          To: cerebralpalsyclub@ yahoogroups. com
          Sent: Friday, September 5, 2008 2:31:08 PM
          Subject: [CEREBRAL PALSY CLUB] Advice!!

          Hi,

          My name is Linda and I have a daughter that is three years old that was
          diagnosed with mild cerebal palsey-spastic diplegia. She has been
          receiving p.t. every since she turned one.. Her dad and I continue to
          work with her. She has not progressed in the past year. She cannot
          stand independently and she cannot walk without a gait trainer. I was
          wondering if anyone has a similar story to mine that wouldn't mind
          sharing it with me so I can have better of an outlook!

          Thanks,
          Linda

          [Non-text portions of this message have been removed]

          [Non-text portions of this message have been removed]

          [Non-text portions of this message have been removed]

          [Non-text portions of this message have been removed]






          [Non-text portions of this message have been removed]
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