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RE: [CEREBRAL PALSY CLUB] Re: My 10 month old son with CP

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  • Almarie Vermulen
    Roselie. Thanks so much for your mail this info helps me a lot. ________________________________ From: cerebralpalsyclub@yahoogroups.com
    Message 1 of 10 , Oct 16, 2007
      Roselie.



      Thanks so much for your mail this info helps me a lot.



      ________________________________

      From: cerebralpalsyclub@yahoogroups.com
      [mailto:cerebralpalsyclub@yahoogroups.com] On Behalf Of Erika
      Sent: Thursday, October 11, 2007 3:24 AM
      To: cerebralpalsyclub@yahoogroups.com
      Subject: [CEREBRAL PALSY CLUB] Re: My 10 month old son with CP



      Hello Rosalie~

      It sounds odd that your neurologist doesn't want to do an MRI. I
      would demand one to be done! I know that my son's MRI is the only
      test that showed definative abnormalities in his brain structure. On
      MRI they found that he had periventricular leukomalacia (softening of
      the white matter) as well as atrophy of the right and left ventricles
      billaterally. In conjucntion with physical delays ie: sitting, head
      control, crawling, etc. etc. etc. All I can think of is that your
      neurologist already has made a diagnosis of CP. and he doesn't want
      you to stress out on any more information. I have also heard that
      sometimes children with CP don't have any noticeable signs of
      abnormalities in their brain structure. I have heard a lot of our
      doctors, therapist, etc. state that CP is under an umbrella of
      several different types of diagnoses'. As it is next to impossible
      to have two CP patients with "EXACT" disabilities. As far as
      figuring out if he was O2 deprived during labor & delivery...I would
      go request a copy of "ALL" medical records from the time you were
      admitted to the time you and "Dylan" were discharged. I did so and
      was quite amazed at how little I was really let in on while I was
      going through his hospitalization as well as my own. Also, unless
      your doctors found abnormalities on ultrasound with his brain
      structure, it is most likely not a genetic reason for his CP
      diagnosis. Also, check in his records to see if his O2 levels were
      decreasing during delivery. Maybe the doctors, nurses failed to
      deliver fast enough...then you have a lawsuit on your hands if you
      decide to proceed forward with that. I hope that my input was useful
      to you. Have a blessed evening!!!

      ~Erika Sullivan~

      --- In cerebralpalsyclub@yahoogroups.com
      <mailto:cerebralpalsyclub%40yahoogroups.com> , "Almarie Vermulen"
      <almarie.vermulen@...> wrote:
      >
      > Hi there
      >
      >
      >
      > My son is currently seeing a neurologist and they can not determine
      what
      > went wrong. He went for a cat scan (normal), metabolic screenings
      and
      > the list does not stop. The only reason I can think of is that with
      > birth he did not receive enough oxygen (He was a c - section). My
      child
      > can not do anything sit, hold a cup etc. For some reason the
      neurologist
      > don't want to do the MRI as they say that it is not important. My
      > problem is if they could not find any brain damage with the cat
      scan, is
      > his brain damage then really that severe, and if not why is he
      > struggling to do normal things. Thanks for the reply and I hope you
      > enjoy your little one as much as I enjoy Dylan
      >
      >
      >
      > Almarie
      >
      >
      >
      > ________________________________
      >
      > From: cerebralpalsyclub@yahoogroups.com
      <mailto:cerebralpalsyclub%40yahoogroups.com>
      > [mailto:cerebralpalsyclub@yahoogroups.com
      <mailto:cerebralpalsyclub%40yahoogroups.com> ] On Behalf Of
      marcusdeanasmum
      > Sent: Wednesday, October 10, 2007 2:32 PM
      > To: cerebralpalsyclub@yahoogroups.com
      <mailto:cerebralpalsyclub%40yahoogroups.com>
      > Subject: [CEREBRAL PALSY CLUB] Re: My 10 month old son with CP
      >
      >
      >
      > Hi Almarie
      >
      > It is possible that something happened inutero and the effects
      > didn't show up till later on.I t sounds like he has moderate cp. At
      > 10 months my daughter could only hold a cup and hold her head up
      but
      > was not sitting or anything like that. If you really wanted to find
      > out how he got it you could see a neurologist..
      >
      > --- In cerebralpalsyclub@yahoogroups.com
      <mailto:cerebralpalsyclub%40yahoogroups.com>
      > <mailto:cerebralpalsyclub%40yahoogroups.com> , "Almarie"
      > <almarie.vermulen@> wrote:
      > >
      > > My son was diagnosed with epilepsy when he was 4 months old. A
      > Month
      > > back he was dignosed with CP. He is 10 months old, he can not use
      > his
      > > hand to hold something, can not sit and have no neck control
      (neck
      > > pulling back). He does babble, laugh and kick his hands and feet.
      > My
      > > problem is that we do not know what caused his condition as he
      was
      > a
      > > healty baby up to 4 months. He did not get any injury that i know
      > off.
      > > He is curently at a occupational and speech therapist. We also
      > have
      > > him on the Quantum magnetic bio-feedback macines (that helps a
      > lot).
      > > I would just like to know how bad is his cp and will he be able
      to
      > at
      > > least sit one day.
      > >
      > > Almarie
      > > South-Africa
      > >
      >
      >
      >
      >
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      >
      > [Non-text portions of this message have been removed]
      >




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