Re: my baby have c.p.???
- Hi Tracy, well all I can tell you is what
happened to us. My son Cooper was diagnosed with cp at the
age of 2 months. Cooper had a grade 3 intraventular
hemmorage and the doctors were painfully honest with us.
They told us that with such a severe brain bleed
Cooper would most likely be severly disabled. He is now
almost 8 yrs old and he has severe cp. Cooper could not
sit or hold his head despite therapy and still can't
but he could not roll over either and had horrible
muscle tone so he is not like your son is some ways.
Cooper has siezures, about 1 or 2 a day, you mention
going to neurology, does your son show signs of siezure
activity? You might get an appointment for an eeg for your
son which is no big deal, they just hook up some
electrodes to his head with this sticky stuff and monitor
his brain activity to see is there is any seizure
activity. I am surprised you have not recieved a diagnosis
by now. You could always take him to another doctor
or the biggest childrens hospital in your area. We
live in Toronto Canada, where about are you?<br>Hope
to hear more from you, <br>Cindy.
- Hi. My son Zack was 6 1/2 when he died last year. When I went to get him out
of befd on New Year's Day he wasn't breathing and was stiff. I called 911 and
they rushe dhim to the hospital. They got his heart started again but he died
again about 20 minutes later and they were not able to bring him back again.
It broke my heart. I'm doing better now after a year and a half. I think he
died during a seizure because he often had severe seizures upon waking that made
his breathing very difficult. He was pressed into a corner of the bed and I
tink the movement of the seizure pushed him into a corner of the bed and he was
unable to get air and being that he was quadraplegic, he could not move
himself to get air. It was really hard on my two surviving sons. Is this similar to
what happened to your son in January? Most people don't understand about our
kids because it is so far out of their realm of experience. Four children out
of seven have died from his preschool class and one boy from his first grade
class has also died. I'd love to hear more about your son and any problems you
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