- Hi, my name is Kirby and I'm a newbie.My foster son Adam has CP.He;s quadrapeligic, tube fed and non-verbal.He just turned 3 last month.Can't wait to meet others here.
- Hi. My son Zack was 6 1/2 when he died last year. When I went to get him out
of befd on New Year's Day he wasn't breathing and was stiff. I called 911 and
they rushe dhim to the hospital. They got his heart started again but he died
again about 20 minutes later and they were not able to bring him back again.
It broke my heart. I'm doing better now after a year and a half. I think he
died during a seizure because he often had severe seizures upon waking that made
his breathing very difficult. He was pressed into a corner of the bed and I
tink the movement of the seizure pushed him into a corner of the bed and he was
unable to get air and being that he was quadraplegic, he could not move
himself to get air. It was really hard on my two surviving sons. Is this similar to
what happened to your son in January? Most people don't understand about our
kids because it is so far out of their realm of experience. Four children out
of seven have died from his preschool class and one boy from his first grade
class has also died. I'd love to hear more about your son and any problems you
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