- Hi Heather. It took me tons of research and lots of online groups to
finally do what my heard told me to try from the beginning on an
intuitive level. I too asked if anyone has had any negative
experience and did hear anything. First, do no harm right? My fear
was that it would bring on seizures since my daughter is seizure
prone but has not had one since the onset of her illness at 3 weeks.
When I was confident no harm would come, I just jumped in and did
it. I am so glad I did and have done 60 sessions so far.
We were lucky with the 'stress' level. We drove 2 hrs each way to PA
but my daughter was 10 months the first time and 1.8 yrs the second
time so it was easy since she was not that mobile yet. My husband
who is home in the day did the trek with her. I worked. The cost
was tough, my mom helped us out. The stress would be different with
each family I guess.
There were no side effects besides her improving cognitively and
physically! Have you researched where you would go if you did it? A
great website is:
Good luck in your decision. Let me know what you decide! --MANDY
--- In email@example.com, Heather Stein
> Ok, so I've been reading all of this correspondence about HBOTwarily. Now I am curious. I have a 3 1/2 year old with spastic
quadraplegia CP. Since has been in therapy since she was 6 mos old
and is now in preschool. We will be enrolling her in a Conductive
Education program this summer for 10 weeks. She has made some
progress, though slow. She is still unable to talk, walk, crawl,
sit, or stand. When my husband and I first heard about HBO therapy a
year ago, we brushed it off. No research, not enough info, blah,
> Now that I have read about some real parents who have had goodexperiences, I am intrigued. We are always willing to try whatever
we can to help our daughter and perhaps I was too quick to dismiss
this option. Has anyone had any negative experiences?
Realistically, what are the side effects and how much stress does
this put on the family? Anything I should know ahead of time? Any
info would be greatly appreciated. Thank you so much.
> Heather Stein (mother to Natasha & Makayla)
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