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3671Re: [CEREBRAL PALSY CLUB] I have been away for a few years

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  • nevadatomnevada
    Jul 12, 2006
      Im 18 and i have cerebral palsy
      and i only weigh 125 pounds and im tall.
      i cant gain any mass.
      but i can also eat alot.
      --- In cerebralpalsyclub@yahoogroups.com, chrisb16_us <no_reply@...>
      wrote:
      >
      > ---Hi Veda thanks for the post. The one thing I can say I have
      been
      > lucky about is Josh's eating. He can eat like no bodies business
      > but, he does not gain weight. He is almost 13 and weighs right
      > around 50 pounds. What kind of seizures does your child have? I
      > look forward to talking with you.
      >
      > Chris
      >
      > In cerebralpalsyclub@yahoogroups.com, veda jayaram <veda_nj@>
      > wrote:
      > >
      > > chris,
      > > Veda here I have a Son Balaji who is diagnosed as quadraplegic
      > cp with seizures. He is 6 yrs old with little functional moments
      of
      > arms and legs. He had hell lot of problems with feeding. The docs
      > had insisted on ig tubes, but no thank god he is learnt to swallow
      > now. Ok will talk to u later. Bye
      > >
      > > Veda
      > >
      > > chrisb16_us <no_reply@yahoogroups.com> wrote:
      > > ---Staci... I think we have an awful lot in common.
      Yeah
      > Josh
      > > wears braces and has since he was 2. He can walk without them
      > around
      > > the house but, not anywhere else. Josh was 2 weeks overdue and
      > > huge. He got stuck in the birth canal but, the doctor insisted on
      > > making me continue to push for 4 hours. By the time he realized I
      > > wasn't going to give birth it was too late and josh's heart rate
      > was
      > > in the 40's. He had to be resusitated for 10 minutes before they
      > > brought him back. He started having seizures 12 hours after birth
      > > and had a brain bleed. They transfered him to Springfield NICU
      and
      > > he was there for 2 weeks. They told us Josh would not be able to
      > do
      > > anything but at 13 he sits, uses a comunication devise, walks
      with
      > > some supervision,basically he has defied all of there
      predictions.
      > > Just never give up hope Staci. I will talk to you later.
      > >
      > > Chris
      > >
      > > In cerebralpalsyclub@yahoogroups.com, staci <flygirl_82us@>
      > > wrote:
      > > >
      > > > Hi Chris,
      > > > Thanks for the compliment on Hunters name. Its the only name me
      > > and my husband really liked. Hunter is doing pretty good he
      > doesn't
      > > have seizures but his leg muscles are really tight. He wears
      > braces
      > > and without them he walks on his toes. The biggest thing we are
      > goin
      > > through now is getting him all the services he needs like PT. I
      am
      > > talking to a lawyer right now about possible malpractice.
      > > > Hunter was in distress before he was born and the umbilical
      > > cord was pressed against his head when he came out. I think they
      > > should of done a C-section.
      > > > the neurologist told me it happened sometime during labor and
      > > delivery.
      > > > We are heading out to see some fireworks right now so I wil
      > > ltalk more later.
      > > > Happy Fourth to you too!
      > > > Staci
      > > >
      > > > chrisb16_us <no_reply@yahoogroups.com> wrote:
      > > > ---Stacy, Josh has his moments... Today has been a good
      > > day. Josh
      > > > has alot of seizures and other problems but, he is doing pretty
      > > > good. He had hip reconstruction surgery in January and has a
      > long
      > > > recovery. I think it worked though. just a long road. How is
      > > > Hunter? I love that name, by the way. Josh was injured at
      birth.
      > > > The Dotor made a mistake and damaged his brain. Was Hunter born
      > > > with his CP or was there an accident after his birth? He has
      > made
      > > > many wonderful strides in his rough life. Have a great 4th of
      > July
      > > > Staci and I will talk to you soon.
      > > >
      > > > Chris
      > > >
      > > > In cerebralpalsyclub@yahoogroups.com, staci <flygirl_82us@>
      > > > wrote:
      > > > >
      > > > > Hey Chris,
      > > > > My son has the exact same diagnoses as yours. Hunter is
      > spastic
      > > > quad with right worse than left side and legs worse than arms.
      > Hes
      > > 3
      > > > years old. How is Josh doing now. You said he is 13?
      > > > > Staci
      > > > >
      > > > > chrisb16_us <no_reply@yahoogroups.com> wrote:
      > > > > ---Hi Erin we live about 35 miles from Decatur so pretty
      > > > much right
      > > > > smack in the middle of the state. Josh also has some diplegia
      > > they
      > > > > basically said he was spastic Quad with right side being
      worse
      > > and
      > > > > legs being worse than arms. Well you have a great 4th of July
      > > and
      > > > I
      > > > > will hopefully chat with you soon.
      > > > > In rscerebralpalsyclub@yahoogroups.com, Erin Palmer
      > <kslasmom@>
      > > > > wrote:
      > > > > >
      > > > > > Hello Christine,
      > > > > >
      > > > > > What part of IL? I live in southern IL. My daughter is 3
      > > almost
      > > > > 4. She has spastic diplegia with some involvment in her arms.
      > > Well
      > > > > hope to hear from you soon.
      > > > > >
      > > > > > Erin
      > > > > >
      > > > > > chrisb16_us <no_reply@yahoogroups.com> wrote:
      > > > > > Hey everyone I used to be on here everyday and I have
      > > > > been away so
      > > > > > hello again. I hope all of you are good and I am looking
      > > forward
      > > > > to
      > > > > > talking to you all again. I would like to reintroduce
      myself
      > > to
      > > > > all
      > > > > > of you. My name is Christine and I am the proud parent of
      > Josh
      > > > who
      > > > > is
      > > > > > almost 13 years old and has spastic Quad cp. He is the
      light
      > > of
      > > > my
      > > > > > life and I love him dearly. He also has a severe seizure
      > > > disorder
      > > > > > that has caused us to have the vagel nerve stimulator in.
      > > > > Sometimes
      > > > > > it works and sometimes it does nothing but, he is doing
      well
      > > > right
      > > > > > now. I also have a almost 8 year old boy who is a great
      kid.
      > > We
      > > > > live
      > > > > > in Illinois and I am a stay at home mom. I can't wait to
      get
      > > to
      > > > > know
      > > > > > you all again and catch up on everyone. I will talk to you
      > all
      > > > soon
      > > > > >
      > > > > >
      > > > > >
      > > > > >
      > > > > >
      > > > > >
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