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Group Description

For those looking for information on Cerebellar Mutism or Posterior Fossa Syndrome, please check the CM/PFS Resource Center at http://www.braintumorkids.org/Medical_News/cerebellar_mutism.asp

This site is primarily for support group of parents/friends of children with brain tumors (medulloblastoma, astrocytoma, ependymoma, rhabdoid, choroid papilloma as well as others) who suffered from cerebellar mutism and posterior fossa syndrome after brain tumor removal. Approved members can access a 52 web based resource guide for children with brain tumors from the main page. Hope and strength can come from finding that this road has been travelled before.

To maintain privacy and security, this list asks each new member to explain their reason for joining the list upon subscription. This information for the basis of a new member introduction to the group. Information from this list is not to be taken as medical advice.

We encourage all medical professionals including, neurosurgeons, pediatric oncologists, and neuro-psychologists, child life specialists, and speech therapists interested in cerebellar mutism/posterior fossa syndrome to join. Medical professionals may remain anonymous on the list after introducing themselves to the moderators upon subscription.

Those looking for general support regarding pediatric brain tumors please look at http://health.groups.yahoo.com/group/Pediatricbraintumors/

Group Information

  • 318
  • Children's
  • Dec 4, 2000
  • English

Group Settings

  • This is a restricted group.
  • Attachments are not permitted.
  • Members cannot hide email address.
  • Listed in Yahoo Groups directory.
  • Membership requires approval.
  • Messages from new members require approval.
  • All members can post messages.

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