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Group Description

Welcome to Butterfly Children - raising awareness of Epidermolysis Bullosa - EB

The Butterfly Children have skins as fragile as a butterfly wing - skin so delicate and fragile that even the slightest touch can hurt. Please join and show your support.
This is a gathering place for people of all walks of life, and whether or not you've even heard of EB, you're welcome. Drop by, make yourselves at home, we're here for all. Stick some music on, get a cuppa, and grab a chair, or if you're like me, loll on the floor. Let's put the world to rights :)

Great to have you on board :) - hon_w.rm and castlering (founders); rash_1999_uk and pinky_lefty_revolutionary.(moderators)

PLEASE NOTE - we have no affiliation with DEBRA or any other EB organisation. Any enquiries about EB, treatments and issues relating should be forwarded to DEBRA and your doctor.

This site is a member of the Epidermolysis Bullosa WebRing.

To browse visit Here

Group Information

  • 101
  • Support
  • Dec 19, 1999
  • English

Group Settings

  • This is a restricted group.
  • Attachments are not permitted.
  • Members can hide email address.
  • Listed in Yahoo Groups directory.
  • Membership requires approval.
  • Messages are not moderated.
  • All members can post messages.

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