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Group Description

Craniosynostosis is a very divestating word to hear, their are many aspects of it. The initial shock of finding out your child has it, the discussion of major surgery, and then the surgery itself. You are told that your child will be fine once the surgery is complete and the swelling has gone down.
For many parents this is true and we are so happy that your child got the treatment that he or she needed with no lasting affects.
There is a percentage of us though, that have children with sensory issues, language difficulties, and social delays. Some of our children have been diagnosed with PDD-NOS or Autism as well as various other disorders. Our children have bad behavior issues and suffer from mild headaches.
Beyond Cranio is a group where parents can discuss these after affects of Craniosynostosis and not be afraid of scarring new mothers who are just beginning their journey. Together we can work to research and help each other through hard days. If you are a Christian you can feel free to add your faith, although we will not attack nor try to convert those who are not a Christian.
This group is free of bad language, but you may vent your frustration to its fullest. You can say the deepest of your feelings and you will not be judged as a bad parent, because we are raising very special children and our nerves do wear thin.
I pray that everyone who comes to this group will find exactly what they need. God bless everyone who joins because you do matter.

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  • This is a restricted group.
  • Attachments are permitted.
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  • Listed in Yahoo Groups directory.
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