>Whew. I feel so much better now that I know you workBeing an x-ray technologist has definitely been a plus in this situation.
>in the med. field. You had all those ulnar deviations
>and such that I HEARD our dr say but would NEVER be
>able to remember what and where...
It makes it easier for the ortho to discuss what is happening. Leah's
grandma(the OT) went with us this week for the cast change so she could
discuss the splints she had made for Leah's hands. The discussion between
her and the doctor was interesting, even if I couldn't follow all of it :).
We're grateful that the grandma made a mid-life career change and went into OT.
>sometimes the genes just mutate on their own, that itThis is what we think happened in Melissa's family. The mutation occurred
>isn't necessarily passed down. SHE has a 50/50 chance
>to pass it on but we don't have the gene. She has
in her father, who passed it to Melissa, who passed it to Leah. Nobody else
before her father had the condition. The ortho says 50/50 for us to pass it
along again, and 50/50 for Leah. We're not sure what else genetic
counseling can tell us. We'd have to go to St. Louis( 8 hr) if we want to
go through with it.
Happy New Year!!!
Rob, Melissa, and Leah(2 weeks old today) Graham
Great Bend, KS
- Hi there...I wanted to introduce myself. I sent a letter a little
while ago, but it was never approved by the moderator so I'm trying
Anyhow, I am contemplating adoption of a 9 year old from Latvia who has
arthroyposis. I have a very good handle on what her current ability
level is and what her current needs are. However, I was curious about
the future need for therapies, surgeries and other complications that
Just so you know, she is affected in wrists, elbows, shoulders, hips,
knees and ankles. Her jaw is not affected...she talks about a mile a
minute...I just don't understand much of it since I don't speak
Any help you can offer would be great. Thank you very much.