>Whew. I feel so much better now that I know you work
>in the med. field. You had all those ulnar deviations
>and such that I HEARD our dr say but would NEVER be
>able to remember what and where...
Being an x-ray technologist has definitely been a plus in this situation.
It makes it easier for the ortho to discuss what is happening. Leah's
grandma(the OT) went with us this week for the cast change so she could
discuss the splints she had made for Leah's hands. The discussion between
her and the doctor was interesting, even if I couldn't follow all of it :).
We're grateful that the grandma made a mid-life career change and went into OT.
>sometimes the genes just mutate on their own, that it
>isn't necessarily passed down. SHE has a 50/50 chance
>to pass it on but we don't have the gene. She has
This is what we think happened in Melissa's family. The mutation occurred
in her father, who passed it to Melissa, who passed it to Leah. Nobody else
before her father had the condition. The ortho says 50/50 for us to pass it
along again, and 50/50 for Leah. We're not sure what else genetic
counseling can tell us. We'd have to go to St. Louis( 8 hr) if we want to
go through with it.
Happy New Year!!!
Rob, Melissa, and Leah(2 weeks old today) Graham
Great Bend, KS