Re: [Arthrogryposis Support Group] Looking for some guidance
- i am very sorry to hear about your husbands son.
reading this really has me worried because i read not
long ago about a woman who's child died because it's
intestines died. and they had no idea why. i have
never had any of my sons doctors talk to me about
this. but the next time we go to john hopkins i am
going to address this concern. because my son is only
18 months old and these things are starting to scare
me. as for what you have wrote i really don't know.
like i said my sons doctors have never mentioned
anything like this. i am sorry i got not be of any
help to you.
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