Re: [Arthrogryposis Support Group] Digest Number 367
- hi everyone,
a long time since i been here, sandy and terry hi guys, and to everyone
who joined the group while i have been off line, so whats been goin on un
rhiannon's life well we are waiting for an op on both her feet (not holding
our breathes) nothing seems to move very fast here in england.
they are goin to do both her feet at once when they get round to it. Rhi's
development has been brilliant the only things we have really had problems
with are her speech and obviously her fet (she's dying to stand up, bless
her. Rhiannon is now 15 months old and she's wonderful i'm so proud of her,
for those of you who are new i was pregnant when they diagnosed Rhiannon
with arthrogryposis and the consutants wanted me to terminate the pregnancie
i said not bloody likely, she was 3 weeks early and nowhere near as bad as
they said she was going to be i was pretty much scared to touch her at first
incase i hurt (silly me) but i soon realised i wouldnt. now as isay we are
just waiting on her op and they better hurry up because she desperately
wants to stand up, and yes to answer any questions about if she can get
around she's like lightening on bum and commando crawls faster than the
speed of light.
to those of you that i have spoken to before through email it's been
lonely off line without all of you and i'm so glad to be back on line and to
everone who joined while i was pff line it's nice to meet you.
love and best wishes to all
kim in england with the seven monsters
>From: Sandi Waymire <sandiwaymire@...>_________________________________________________________________
>Subject: Re: [Arthrogryposis Support Group] Digest Number 367
>Date: Tue, 29 Jun 2004 19:12:53 -0700 (PDT)
>Just hug your little one. Give the doctors time to
>figure out what is going on. Do research yourself.
>Just type arthrogryposis into your internet search
>engine. You will find more than you can digest! My
>Sarah is 14 years old. We didn't know anything would
>be wrong with her. She has a very mild case. Just
>enjoy your baby and take each day as it comes.
>Sandi in AR
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