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Important Convention Information from AMCSUPPORT

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  • Lala
    The 3rd Annual Arthrogryposis Convention is just 4 weeks away, if you plan on attending or are seriously considering it, read below to make sure you have done
    Message 1 of 1 , Jun 16, 2008
      The 3rd Annual Arthrogryposis Convention is just 4 weeks away, if you
      plan on attending or are seriously considering it, read below to make
      sure you have done or received all convention related info. If you
      cannot attend be sure to read anyway to submit pictures for the
      slideshow, because we want ALL our AMC families represented at
      convention! http://www.amcsupport.org/ohio

      1. Book a room at the hotel or arrange lodging elsewhere (for hotel
      info email ohio@...) (we are filling up very quickly - the
      anticipates they will reach FULL capacity soon - so please, book
      ASAP if you are coming, we can't guarantee a room, you must reserve a
      room yourself!!) DEADLINE FOR THE GROUP RATE is JUNE 26

      2. Register with the convention committee so we have an accurate head
      count, do this in addition to booking a room! (See below for
      registration questions)

      3. Submit photos to photobucket.com Submit 1 picture of the entire
      family and 1 picture of just the child/ person with Arthrogryposis.
      Login: amcohio Password: ohioohio
      Deadline for submitting your photo is JUNE 25

      4. Order Convention T-shirts if you are coming! Shirts are $10 if
      ordered before July 16 AND picked up at convention. If you can't come
      & want a shirt-we'll let you know how soon! To order T-shirts go to

      5. Tentative Agenda for convention is available upon request from
      ohio@... or on the forums!

      If you have any questions regarding convention please let us know!

      We hope to see you in July!

      -Michele Schaffer, Marybeth Eberhard & Tracey Schalk- Convention Co-

      Registration Questions:


      Phone #:______________________________

      Email Address:________________________________

      Username on the Forums: ______________________

      Name of child/person with AMC: ____________________________

      Child's/person Date of Birth or age: ______________

      Sex of Child/person: F___ M___

      Type of AMC child/person has :____________________________
      (Amyoplasia, Distal, Unknown ect..)

      Your Relationship to the child/person:_____________________

      If you are a medical professional, what is your profession and do you
      currently treat patients with AMC?

      Name and Age of All Children Under the Age of 17 and their
      relationship to the child/person with AMC Attending the Convention:

      First and Last name of all adults attending convention and their
      relationship to the child:

      What do you want to see discussed? What do hope to gain from
      attending this convention?


      Dr. Harold Van Bosse- Lower Extremity Pediatric Orthopedist and former
      director of New York University Arthrogryposis Clinic. Currently
      practicingat Shriners Hospital for Children in Philadelphia.

      Dr. Scott Kozin -upper extremity and hand doctor


      Dr. Pappas and Ellen Moran- Genetics of New York University

      Roundtable Discussion- with all Doctors and Therapists who treat AMC on a
      regular basis

      Rick Guidotti- Positive Exposure Photography-

      Tanya Fernandez-Mote- Adult with Arthrogryposis and disability advocate

      Dr. David Feldman- Chief of Pediatrics Orthopedics New York University
      Hospital For Joint Diseases- Speaking on the hip in Adults with
      Arthrogryposis http://www.med.nyu.edu/clinicians/feldmd02.html

      Ward Foley- Adult with Arthrogryposis and published Author

      Maureen Casey- IEP and Special education-Parent of a child with AMC

      BBQ at Miracle League Field and Miracle Playground- Fully accessible
      baseball field and playground http://www.ohiomiracleleague.org/

      Painting with Theresa, Chris & MK- Hands on painting with Theresa Lucas &
      Chris Hartwick-artists with AMC and Theresa's friend MK

      AMC Adults- AMC Adults gather to discuss current issues of living and
      with AMC

      Canine Companions for Independence- Assistance dogs for people with
      Disabilities http://cci.org/northcentral/index.html

      Steve Thompson- Massage therapist who has treated his 7 year old son with
      AMC since birth

      Christina Battista- Cash and Counseling

      Heather Perrow- Wheelchair/ Adaptive Dance- Parent of a child with AMC

      Arthrogryposis Multiplex Congenita Support Inc, BOD Public Meeting-

      Columbus Mobility Specialist- http://www.columbusmobility.com/

      MetDesk – Special Needs Trusts and Estate Planning

      Kami Nieoff- Special Needs Yoga Instructor www.yogawithkami.com/

      Although we do not charge a registration fee to attend convention, we
      need your help! Please consider either making a personal donation or
      organize a project to raise funds. All donations are tax deductible!
      Arthrogryposis Multiplex Congenita Support, Inc. is a 501 (c) (3) Non
      Profit corporation, registered with the United States Internal Revenue
      Service. If you would like to fundraise for the convention but need
      ideas on how to do so, please contact Ohio@.... We also
      sell AMC wristbands for the purpose of awareness and raising funds for
      the convention. To purchase a wristband or make a tax deductible
      donation, please go to: www.amcsupport.org (Please allow 4-6 weeks for

      Donations may be sent to
      Arthrogryposis Multiplex Congenita Support Inc (Convention FUND)
      P.O. Box 1883
      Salyersville, Ky 41465

      Thanks Everyone!
      Ani S. Vinson
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