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3rd Annual Arthrogryposis Convention Columbus Ohio July 17-20 2008

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  • tracey_schalk
    What: 3rd Annual Arthrogryposis Convention put on by AMC Support Inc (a not for profit 501 (c) (3) organization http://www.amcsupport.org) When: July 17-20
    Message 1 of 3 , Nov 4, 2007
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      What: 3rd Annual Arthrogryposis Convention put on by AMC Support Inc (a not for profit
      501 (c) (3) organization http://www.amcsupport.org)

      When: July 17-20 2008

      Where: Columbus Ohio United States

      Who: If you are:- living with, the parent, grandparent, family member or friend of an
      individual with Arthrogryposis; a doctor, geneticist, mobility specialist, caregiver or any
      other member of the medical field who has treated, is treating or perhaps will treat a
      patient/ client with Arthrogryposis you're invited. We also welcome and encourage the
      attendance of babies, children, and teens with AMC as well as their siblings.

      Why: To provide support and education to anyone touched by Arthrogryposis.

      Cost: Free to attend the convention. All travel, lodging and meal expenses are the
      responsibility of each individual and family.

      How: To receive more information or to register email ohio@... or visit the
      webpage about the convention http://www.amcsupport.org/ohio and fill out the
      questionnaire. If you hit submit and don't receive an email confirmation within a week
      please write ohio@... and we'll address the problem.

      If you would like to join the amcsupport discussion forms please visit
      www.amcsupport.org/forums If you have problems joining please email
      admin@...

      To see pictures and read about our conventions and meet ups where families affected by
      AMC come together click any of these links!

      1st Convention in Chicago August 2006- http://www.amcsupport.org/
      convention2006.htm

      2nd Annual Convention in Texas July 2007- http://www.amcsupport.org/texas

      Buckeye BBQ in Ohio August 2007- http://www.amcsupport.org/buckeye_bbq.htm
    • tracey_schalk
      What: 3rd Annual Arthrogryposis Convention put on by Arthrogryposis Multiplex Congentia Support Inc (AMCSI) (a 501 (c) 3 non-profit organization)
      Message 2 of 3 , Jan 11, 2008
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        What: 3rd Annual Arthrogryposis Convention put on by Arthrogryposis Multiplex
        Congentia Support Inc (AMCSI) (a 501 (c) 3 non-profit organization)
        http://www.amcsupport.org)

        When: July 17-20 2008

        Where: Columbus, Ohio, United States of America

        Who: If you are an adult living with Arthrogryposis. If you are:- living with, the parent,
        grandparent, family member or friend of an individual with Arthrogryposis; a doctor,
        geneticist, mobility specialist, caregiver or any other member of the medical field who has
        treated, is treating or perhaps will treat a patient/ client with Arthrogryposis you're
        invited. We also welcome and encourage the attendance of babies, children, and teens with
        AMC as well as their siblings.

        Why: To provide support and education to anyone touched by Arthrogryposis.

        Cost: Free

        How: To receive more information or to register email ohio@... or visit the
        webpage about the convention http://www.amcsupport.org/ohio and fill out the
        questionnaire. If you hit submit and don't receive an email confirmation within a week
        please write ohio@... and we'll address the problem.

        If you would like to join the amcsupport discussion forms please visit
        www.amcsupport.org/forums If you have problems joining please email
        admin@...

        To see pictures and read about our conventions and meet ups where families affected by
        AMC come together click any of these links!

        1st Convention in Chicago August 2006-
        http://www.amcsupport.org/convention2006.htm

        2nd Annual Convention in Texas July 2007- http://www.amcsupport.org/texas

        Buckeye BBQ in Ohio August 2007- http://www.amcsupport.org/buckeye_bbq.htm
      • tracey_schalk
        What: 3rd Annual Arthrogryposis Convention put on by AMC Support Inc http://www.amcsupport.org When: July 17-20 2008 Where: Columbus Ohio United States Who:
        Message 3 of 3 , May 29 4:54 PM
        • 0 Attachment
          What: 3rd Annual Arthrogryposis Convention put on by AMC Support Inc
          http://www.amcsupport.org

          When: July 17-20 2008

          Where: Columbus Ohio United States

          Who: Anyone whose life has been touched by AMC!

          Why: To provide support and education to anyone touched by Arthrogryposis.

          Cost: Free to attend the convention. All travel, lodging and meal expenses are the
          responsibility of each individual and family.

          How: To receive more information or to register email ohio@... or visit the
          webpage about the convention http://www.amcsupport.org/
          ohio and fill out the questionnaire. If you hit submit and don't receive an email
          confirmation within a week please write ohio@... and we'll address the
          problem.

          Speakers thus far for the 3rd Annual AMC Convention:

          Dr. Harold Van Bosse- Lower Extremity Pediatric Orthopedist and former director of New
          York University Arthrogryposis Clinic. Currently practicing at Shriners Hospital for Children
          in Philadelphia.

          Dr. David Feldman- Chief of Pediatrics Orthopedics New York University Hospital For Joint
          Diseases- Speaking on the hip in Adults with Arthrogryposis
          http://davidsfeldmanmd.com/

          Dr. Pappas and Ellen Moran- Genetics of New York University

          Roundtable Discussion- with all Doctors and Therapists who treat AMC on a regular basis

          Rick Guidotti- Positive Exposure Photography- http://www.positiveexposure.org

          Tanya Fernandez-Mote- Adult with Arthrogryposis and disability advocate
          http://gcpd.ohio.gov/roster.asp#Fernandez

          Ward Foley- Adult with Arthrogryposis and published Author http://www.wardfoley.com/

          Maureen Casey- IEP and Special education-Parent of a child with AMC

          BBQ at Miracle League Field and Miracle Playground- Fully accessible baseball field and
          playground http://www.ohiomiracleleague.org/

          Painting with Theresa, Chris & MK- Hands on painting with Theresa Lucas & Chris
          Hartwick-artists with AMC and Theresa's friend MK
          http://www.hometown.aol.com/terry2745/index.html

          AMC Adults- AMC Adults gather to discuss current issues of living and aging with AMC

          Canine Companions for Independence- Assistance dogs for people with Disabilities
          http://cci.org/northcentral/index.html

          Steve Thompson- Massage therapist who has treated his 7 year old son with AMC since
          birth

          Christina Battista- Cash and Counseling

          Heather Perrow- Wheelchair/ Adaptive Dance- Parent of a child with AMC

          Arthrogryposis Multiplex Congenita Support Inc, BOD Public Meeting-
          http://www.amcupport.org/bod

          Columbus Mobility Specialist- http://www.columbusmobility.com/

          MetDesk – Special Needs Trusts and Estate Planning
          http://www.metlife.com/Applications/Corporate/WPS/CDA/PageGenerator/0,1674,P475,0
          0.html

          Kami Nieoff- Special Needs Yoga Instructor www.yogawithkami.com/

          If you would like to join the amcsupport discussion forms please visit
          www.amcsupport.org/forums If you have problems joining please email
          admin@...

          To see pictures and read about our conventions and meet ups where families affected by
          AMC come together click any of these links!

          1st Convention in Chicago August 2006-
          http://www.amcsupport.org/convention2006.htm

          2nd Annual Convention in Texas July 2007- http://www.amcsupport.org/texas

          Buckeye BBQ in Ohio August 2007- http://www.amcsupport.org/buckeye_bbq.htm
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