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Health care for adults

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  • John Reiss
    I thought group members might be interested in two new resources that we have developed are are available on our Web site...and might have some ideas for
    Message 1 of 1 , Aug 6, 2005
      I thought group members might be interested in two new resources that
      we have developed are are available on our Web site...and might have
      some ideas for improving them...

      The first is a booklet for youth and families
      entitled "Envisioning My Future: A Young Person's
      Guide to Health Care Transition". It is an introduction to the issue
      of health care related transition for young people and their families;
      and helps a family get started. Since it was developed for use in
      Florida, many of the resources are specific to our state - but other
      resources are national.

      We also developed a set of three health care
      transition workbooks for youth and young adults &
      families. The workbooks (for ages 12-14; 15-17; and
      18+) are designed to help families and youth think
      about future goals, to identify things that ayoung
      person is doing currently to be independent in health
      care; and help figure out what needs to be done to
      assure that the young person's future transition from
      pediatric to adult-oriented health care goes smoothly.

      While these workbooks can be done independently, by a
      young person and family, it may be best for families,
      youth and providers to work together to identify
      current strengths and needs; identify priorities; and
      develop and implement a plan for addressing current
      and future needs.

      These materials are available on the health care
      transitions web site.

      To access these materials, go to:

      http://hctransitions.ichp.edu/resources.html

      Comments and suggestions about these materials are
      welcome - as well as any suggestions you have for
      improving the process of moving from pediatric to
      adult care; lessons you have learned that you would
      like to share with parents, teens and other young adults
      with Arthrogryposis - and ideas you have for improving the
      adult health care system. From several young adults I have talked
      with who have arthrogryposis, they continue to see pediatric
      specialists; and see an internist or a family physician from general
      health problems...and a big problem is having to go to an adult
      hospital for care - where few staff are familiar with the condition...

      Thanks
      John Reiss
      Institute for Child Health Policy
      jgr@...
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