new kids arthrogryposis group
- after talking with Lori & Masha this weekend (Masha is 10 with
arthrogryposis) (we went 2 Chicago 2gether, had a blast, will post pics later)
we realized that kids need a place to meet other kids with arthrogryposis to
talk & make new friends, but it really needed to be moderated. Lori thought it
ought to NOT be a parent of AMC kids but an adult, so here I am!! With some
help from Betty who also has amc.
if you have a child or know of one with arthrogryposis please send the link
to this new group!
I know there has been many asking for penpals for their kids & now there is a
Yahoo! Groups : arthrogryposisyoungadults
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