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Re: [Adults AMC] LOOKING FOR PEOPLE WITH AMC

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  • Helyn Strom-Henricksen
    ... From: AWGrif127@aol.com To: amc_adults@yahoogroups.com Sent: Saturday, March 29, 2003 7:57 AM Subject: Re: [Adults AMC] LOOKING FOR PEOPLE WITH AMC Helyn
    Message 1 of 37 , Mar 30, 2003
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      ----- Original Message -----
      From: AWGrif127@...
      To: amc_adults@yahoogroups.com
      Sent: Saturday, March 29, 2003 7:57 AM
      Subject: Re: [Adults AMC] LOOKING FOR PEOPLE WITH AMC


      Helyn Henricksson--- Thanks. I am wondering if You or many other adults are
      having more knee problems due to AMC. I am age 54, have always been very
      independent, worked full-time, etc. I fell in Dec., 2002, injured my rt knee
      and then have more valgus and now pain in my left knee with walking or
      weight-bearing-- AM looking for drs. specialists who see adults. Also, wonder
      if you have any similar problems. My dr. says it is from my putting more
      pressure on left knee due to compensating with rigtht knee injury and also
      that it is from arthrogryposis and muscular weakness in left quads..
      I appreciate hearing from you. Thanks---- Ann

      I also have problems with my knees, if I fall. I have been told that the long rehabilitation after a knee injury or any other type of injury to the joints is due to the larger amount of scar tissue people with AMC tend to have. The blood supply to the scar tissue areas are not normal therefore taking a longer time for the healing process. I too have problems finding doctors, even in the Boston area, familiar with working with adults with AMC. However, the clinic associated with the Children's Hospital in Seattle is a good resource to find doctors for such purpose. Good luck
      Helyn
      awgrif127@...


      [Non-text portions of this message have been removed]




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    • Lorie
      Hi Patty. Sounds exactly what I need. What kind of fundraisers did ur friends do? Ur Job sounds interesting too. Lorie ... seat, automatic ramp and door. I
      Message 37 of 37 , Apr 12, 2003
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        Hi Patty. Sounds exactly what I need. What kind of fundraisers did ur
        friends do? Ur Job sounds interesting too.

        Lorie

        --- In amc_adults@yahoogroups.com, "Patty Clarke" <pelclarke@t...>
        wrote:
        > Hi Lorie, I have a minivan with lowered floor, power base swivel
        seat, automatic ramp and door. I love it and I had friends do a
        fundraiser to help me with it and voc rehab helped with some and my
        family and part a loan...it is expensive...
        > ----- Original Message -----
        > From: Lorie
        > To: amc_adults@yahoogroups.com
        > Sent: Friday, March 28, 2003 3:40 PM
        > Subject: Re: [Adults AMC] LOOKING FOR PEOPLE WITH AMC
        >
        >
        > Wow Very impressive. How is it living in Canada? I'm trying to
        get a
        > van n my license. The van is more th issue than anything. Anyone
        have
        > any tips? Have a wondermous day. Lorie
        >
        > --- In amc_adults@yahoogroups.com, "Patty Clarke"
        <pelclarke@t...>
        > wrote:
        > > Hello there, I am 43 and live in Canada, have AMC, use a power
        and
        > manual wheelchair, drive a van and work full time as a Recreation
        > Programmer.....
        > > ----- Original Message -----
        > > From: Madonna Kelly
        > > To: amc_adults@yahoogroups.com
        > > Sent: Tuesday, March 25, 2003 3:54 AM
        > > Subject: [Adults AMC] LOOKING FOR PEOPLE WITH AMC
        > >
        > >
        > > Hi everyone,
        > > i am new 2 this sight my question is do anyone know of anyone
        > over the age
        > > of 41 that has amc and in canada would be even better,
        greatly
        > appreciated
        > >
        > > MaDonna K
        > >
        > >
        > >
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