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3608Neck & Back Cracking and Leg Braces

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  • Tedd Mallasch
    Jan 18, 2013
      Hello All,

      I am a 56 year old guy with Arthrogryposis.  My wrists & feet are bent, my legs & arms are short & skinny, both arms were locked straight, however Shriners Hospital bent my right arm a long time ago, so I could get a hand to my face.

      I use my neck a lot, as a result I have an 18 inch neck.  Never had any neck or back pain, but my neck started cracking about four months ago.  When I turn my head hard & fast to the right, my neck cracks, sometimes I need to stand straight, with the base of my neck touching the outside of a corner in my house, to get leverage in order to crack it.  It always feels like it needs to crack, sometimes down into my spine, and I've been cracking it about 25 times a day.  It seems to lock up when I'm on my computer too long or when I lie down in bed.  I was wondering whether this is a normal progression with AMC or if it's just old age.  Any thoughts?

      LEG BRACES: It seems to me the standard leather & metal brace hasn't really changed all that much from the days of the Civil War.  Not that they are perfect by any stretch of the imagination.  My theories as to why they haven't evolved have to do with lack of profit making a new type of brace and the fact that users often don't walk a lot, so the discomfort isn't overbearing.  I tried plastic braces, but they were worse for me than the regular ones.  One of my frustrations is that I cannot put on & off the braces by myself, which impacts my independence and puts an undue burden on my elderly mother. 

      Here are my thoughts...  Use silicon (similar to the silicon sleeves used for prosthetics) to cushion the tops of the braces, knee-caps, & the braces themselves, and have a zip-up sleeve that would encompass the entire braces.  Then have the sole of a shoe affixed to the brace (with the front of the sole turned up, similar to Dutch shoes, so they wouldn't catch), on top of the sole would be velcro, and there would be velcro on the bottom of the shoes.  The shoes would close with velcro rather than laces.  The shoes would affix onto the sole, which is affixed to the brace.

      Just wondering whether anybody has tried anything similar to what I am considering, as well as your thoughts.


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