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3329Re: [Adults AMC] New York Area Doctor

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  • Dan Gentile
    Sep 18, 2009
      Thank you for that info.

      Dan Gentile
      516.443.2041
      Sent from my iPhone

      On Sep 18, 2009, at 7:09 AM, morne vanWyk <vanwyk.morne@...>
      wrote:

      > Hi Dan,
      >
      > My name is Morne, I'm 34 and I'm writing from South Africa. I am
      > currently in the process of finising a thesis on the social effects
      > of arthrogryposis on such individual (I'm studying towards a Masters
      > degree in Research Psychology). I live with mild arthrogryposis as
      > well. Well, because of my thesis, I did a lot of reading about
      > A.M.C. Literature suggests that arthrogryposis is not an heridetary
      > condition. So, you can't pass it on to your kids. The fact that your
      > brother has a healthy little girl, bears testimony to that. I have
      > read a lot about other A.M.C.'ers who have healthy children. What
      > I'll suggest is that you read up a bit more on arthrogryposis or
      > contact Avenues for some info. I hope this helps.....
      >
      > Good luck!
      >
      > Kind regards
      > Morne
      >
      >
      >
      > --- On Mon, 9/14/09, dannyg887 <dannyg887@...> wrote:
      >
      > From: dannyg887 <dannyg887@...>
      > Subject: [Adults AMC] New York Area Doctor
      > To: amc_adults@yahoogroups.com
      > Date: Monday, September 14, 2009, 6:49 PM
      >
      >
      >
      > I am 32 years old and was diagnosed with Arthrogryposis at birth. I
      > have treated the symptoms of Arthrogryposis like my scoliosis and
      > related breathing limitations all my life and never really
      > concentrated on seeing a doctor for my Arthrogryposis since i was
      > very young. Staying active and PT was always the best treatment.
      >
      > I write to this group today to see if there is a doctor anywhere on
      > the east coast, specifically the NYC Area, that specializes in
      > Arthrogryposis that i can get an updated diagnosis on the type I
      > have. My wife and i are looking to have children and want to make
      > sure the chances are good that this is not something i can pass to
      > them.
      >
      > I have read a lot that seems to make me think the form i have is not
      > something that can be passed down but my brother was born with
      > clubbed feet and getting an updated diagnosis is probably something
      > good to have. My brother did have a heathy baby girl a year and a
      > half ago.
      >
      > Any and all information will be greatly appreciated. Thank you for
      > your time. Dan
      >
      > [Non-text portions of this message have been removed]
      >
      >


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