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3202Re: [Adults AMC] Re: Losing the Use of my Legs

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  • Brenda
    Nov 2, 2008
    • 0 Attachment
      I think it depends on each situation... I have a rod due to scoliosis and also have restrictive lung disease.  I had the rod put in 1991.  I know they have made a lot of advances and improvements since then. 
       
      Realistically, the Rod saved my life because it stopped the progression of the curve.  During the surgery they also improved the curvature somewhat.  But the main point of the surgery was stop the progression of the curve.... if left it could have smothered my lungs and crushed my heart.  Even adults can experience a worsing of the curve so it's good to have it checked.
       
      So... my advice would be to see if you can see a scoliosis specialist and discuss with him or her your case.
       
      If you have questions about my experience let me know.
       
      Brenda
      Beekayn@...

      --- On Sat, 11/1/08, Tiffany Holmlund <tiny292796@...> wrote:

      From: Tiffany Holmlund <tiny292796@...>
      Subject: Re: [Adults AMC] Re: Losing the Use of my Legs
      To: amc_adults@yahoogroups.com
      Date: Saturday, November 1, 2008, 11:46 AM






      i'm not trying to be rude but does the rod help or make it worse? i have to decide if thats a option or not because i have 2 kids and i need to keep being active. So please let me know something good or bad. Tiny Tiger

      --- On Sat, 11/1/08, Roxi McCutchan <rocks0508@yahoo. com> wrote:

      From: Roxi McCutchan <rocks0508@yahoo. com>
      Subject: Re: [Adults AMC] Re: Losing the Use of my Legs
      To: amc_adults@yahoogro ups.com
      Date: Saturday, November 1, 2008, 12:38 PM

      I already have a steel rod fused to my spine and have since I was 10. I'll mention the nerve test to my doctor. If either you are jazzy_t wouldn't mind sharing your doctors so that my doctor can contact them and ask questions about my case and maybe get a different prospective on my situation, you can email their info to me privately. If not, that's ok. At least I can pass this along. Thanks

      ____________ _________ _________ __
      From: Denise Patterson <jrtowner2008@ att.net>
      To: amc_adults@yahoogro ups.com
      Sent: Saturday, November 1, 2008 8:28:33 AM
      Subject: [Adults AMC] Re: Losing the Use of my Legs

      I've been there.  I found that the problem wasn't my legs but my spine.  I limped and it finally wore our the lower vertebrae to the point that it pressed on the nerves.  I'm using crutches and a manual wheel chair for long distances.  The only other option available to me was to fuse the spine.  By doing that I would lose a lot of movement, so that really is not a good option for me. 
       Denise
      Dogs are not our whole life,
      But they make our lives whole.

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