1814Re: [Adults AMC] It's Been A Long Time...
- Dec 1, 2003WOW!!! Dan I'm so proud of you and congrats on you and Brooke on the engagement. Best wishes to you both. I too have found ways for me to be more independent, you mentioned on cutting toe nails, well I found a way to do that, I use a CD case and I tape the clippers to it, then put it on the floor, I use a long stick that I got from Shriners Hospital a while back and then I take my toenail place it inside the clipper, take the stick and push down. It works for me, but the shower part I'm still working on it though. I wonder if you have any suggestions on how to come about it? I use my parents shower cause it's a walk in and I have trouble getting into a tub. I'm also thinking about buy a shower chair so I don't have to stand and don't worry about slipping or falling. I'm planning to move out of my parent's house when I turn 30, and so I'm trying different ways and get things ready when I move out. Hope to hear from you soon. Again Congratulations on you both.
Dan <dan@...> wrote:
As the owner of this group, I have stayed silent far
too long. I used to post somewhat actively, but then I
For those who don't know me, my name is Dan, I'm 29
(soon to be 30 in January) and I have arthrogryposis.
I was always the type of person that wasn't really
angered by my amc, but just felt that it held me back.
Up until this year, I was still getting showered and
dressed by my parents. I say "up until" because I can
proudly say I FINALLY learned to do it all on my own.
I was just never motivated to do it on my own because
my parents were always there for me. Plus, I tried the
dressing sticks and therapists recommendations, but
they just never worked for me, no matter how hard I
In November of 2002, I took a bold step. I traveled by
myself from Florida to Kentucky to meet a fellow list
member named Brooke. It took a lot of convincing on
her part to get me to visit, cause of all the help
that I would need. Her friend just happens to be a
caretaker and she assured me that she would assist me
in anything I need. My parents weren't sure if it was
a good idea or not, but I went anyway. The trip was a
success and we all got along great.
The following 8 months, I traveled to Kentucky about
12 times. Each time got easier, but I still wasn't
able to completely dress myself.
In July, Brooke and I had become so attached to each
other, that I offered to move out of my parents house
to be closer to her.
She found an apartment for me that she felt would be
perfect. It's a half mile away from her house. I
checked it out a few weeks later and agreed that it
was great. What sold me on it was that it had a shelf
in the shower. I knew that would be convenient for me
cause then I could pour shampoo onto it and then rub
my head in it.
I told my parents about the place and they thought it
was a great opportunity. There was still that
uncertainty of dressing myself though. By this time, I
could put a shirt on and shorts/pants (as long as I'm
wearing a belt). Socks were virtually impossible, same
for combing my hair.
I ended up getting the apartment. I just assumed that
Brooke could help me daily until I could get a
caretaker to visit me daily.
When my parents came up with all of belongings, they
looked for ways for me to do things on my own. A few
things we came up with were:
- A comb, glued to a piece of wood that is hung up on
my wall. A mirror is hung next to it. That way I can
move my head under the comb and I can do my hair
- A scrub brush, suction cupped to the shower. After
rubbing the shampoo on the shelf, I then bring my head
to the brush to get it all in.
- Toe nail clippers, screwed to a board. I lay a paper
towel under the board and with the foot I'm not
clipping, I use it to push down on the clippers.
These have all worked great, but there was still the
sock issue. I had ordered a sock aid a few weeks prior
to moving, but I couldn't do it.
My mom then came up with a great idea. Brooke's family
had given me dining room table and chairs. The chairs
just happened to have 4 legs, so my mom put the sock
onto the front legs of the 2 chairs side by side, she
then split the chairs, thus widening the sock and then
inserted her foot. It worked perfectly for her, so I
gave it a try and it was a success. I was so relieved.
With that, I no longer needed to worry about needing a
My life has changed for the better since meeting
Brooke. She has motivated me to do so much for myself.
It has truly been a blessing having her a part of my
We are now officially engaged, too. I gave her a nice
ring on her birthday and proposed that same day.
Living on my own just gets easier and easier each day.
I don't really know why I typed all of this. I guess
to show parents of children with amc some ideas that
they can possibly use, or maybe I typed it all to let
you know that I'm still alive...LOL
Thanks for reading,
AOL IM - Dango727
Yahoo! - dango727
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