My name is Cassie and I have an 18 month old son, Gus. He was
diagnosed with AHC 4 months ago. Previous to that he had been
misdiagnosed with epilepsy. He is currently taking Sibelium and
lamictal and when he has an episode we give him chloral hydrate. I
would love to hear from anyone as I have so many unanswered questions .
If there is anyone out there from Australia that would be fantastic because AHC
is basically unheard of over here and I feel very isolated.
It has been great to read your messages, but also scary, it has
opened my eyes to so many things that I was not aware of.
What's in store for the future????? Has anyone got any case histories that they would be willing to share with me???
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