RE: [adie_syndrome] Re: how is everything?
MessageHello everyone,Thanks for all the responses to my questions about migraines and joint problems.I have just seen a rheumatologist about the pain! My tests are all normal except that my rheumatoid factor is up a bit ( if I didn't have pain no-one would say anything!!! that's how little it is up).He has diagnosed Arthritis though - coz I have the pain and some joint inflammation.My immune system tested out fine.Now here is where I am going - Arthritis is associated with the immune system attacking you coz it thinks it has to. I am told that it is usually an "event" like a big virus or some trauma, that triggers arthritis(does this sound familiar?).I do not apparently have all the evidence of arthritis but enough for diagnosis . Also told that Arthritis is still a pretty big unknown with the medical world .......so its a bit basic.I am reading lots on arthritis and this appears to be so.I asked about any possible link between the Adies and arthritis but got a quick patronising smile and a NO.So are there other symptoms that both these conditions display .I have been given steroids to take on the basis of the diagnosis am not keen to do that especially when I now have 2 "event" triggered conditions that are not well understood and also appear to have some cross-over.Sorry for the verryyy long mail but feel the need to explore this as I feel that steroids look scary ( as I may not have arthritis and maybe its the adies or vice-versa) and I think there is more to look at before going that route.Take careErin Sullivan (Cowell) the OZ in the UK
My Rheumatoid factor was also slightly elevated when I
found out I had aquired Adies in both eyes. At first
the Rhumatologist thought I had Lupus, but those tests
came out negative. I too believe there might be a
connection between the Adies and the rheumatoid
But then, who am I. LOL
--- Erin Sullivan <erinsullivan_aus@...> wrote:
> > My tests are all normal__________________________________________________
> except that my rheumatoid factor is up a bit ( if I
> didn't have pain no-one
> would say anything!!! that's how little it is up).
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