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  • arnablarna
    Just typed adie s syndrome into Yahoo and came up with this site. I m 28 year old woman. I was diagnosed with Adie s about 6 or 7 years ago. My specialist at
    Message 1 of 4 , Jun 3, 2006
      Just typed adie's syndrome into Yahoo and came up with this site.

      I'm 28 year old woman. I was diagnosed with Adie's about 6 or 7 years
      ago. My specialist at the hospital told me what it was. Literally that
      is all. I asked the causes and implications and she just shrugged and
      said no one really knew. There was NOTHING on the net at the time

      So apart from the headaches and a slightly freaky looking eye and the
      usual visual impairments you would expect, I've pretty much forgotten
      about it.

      Should I be worried about deterioration? Should I be doing something
      else? Do doctors know more about it now and would it be worth going
      back to get something for the headaches? Or shall I just leave well
      alone
    • Trish
      I just go to the Doctor once a year. I m one of the lucky ones I guess cause I really don t suffer from headaches but then I don t stress my eye out neither.
      Message 2 of 4 , Jun 5, 2006
        I just go to the Doctor once a year. I'm one of the lucky ones I guess cause I really don't suffer from headaches but then I don't stress my eye out neither.
         
        Trish.

        arnablarna <arnablarna@...> wrote:
        Just typed adie's syndrome into Yahoo and came up with this site.

        I'm 28 year old woman. I was diagnosed with Adie's about 6 or 7 years
        ago. My specialist at the hospital told me what it was. Literally that
        is all. I asked the causes and implications and she just shrugged and
        said no one really knew. There was NOTHING on the net at the time

        So apart from the headaches and a slightly freaky looking eye and the
        usual visual impairments you would expect, I've pretty much forgotten
        about it.

        Should I be worried about deterioration? Should I be doing something
        else? Do doctors know more about it now and would it be worth going
        back to get something for the headaches? Or shall I just leave well
        alone








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      • BRIDGET OREILLY
        got ur e-mail i already had the site theres loads about it lol arnablarna wrote: Just typed adie s syndrome into Yahoo and came up
        Message 3 of 4 , Jun 8, 2006
          got ur e-mail i already had the site theres loads about it lol

          arnablarna <arnablarna@...> wrote:
          Just typed adie's syndrome into Yahoo and came up with this site.

          I'm 28 year old woman. I was diagnosed with Adie's about 6 or 7 years
          ago. My specialist at the hospital told me what it was. Literally that
          is all. I asked the causes and implications and she just shrugged and
          said no one really knew. There was NOTHING on the net at the time

          So apart from the headaches and a slightly freaky looking eye and the
          usual visual impairments you would expect, I've pretty much forgotten
          about it.

          Should I be worried about deterioration? Should I be doing something
          else? Do doctors know more about it now and would it be worth going
          back to get something for the headaches? Or shall I just leave well
          alone










          bridget

          Send instant messages to your online friends http://uk.messenger.yahoo.com

        • lucy gleeson
          hi there the same thing happened to me when i tried pilocarpine, was in a lot of pain and started shaking quite violently. i think there s alot of info in the
          Message 4 of 4 , Jun 16, 2006
            hi there
            the same thing happened to me when i tried
            pilocarpine,
            was in a lot of pain and started shaking quite
            violently.
            i think there's alot of info in the website so that
            might help you
            lucy
            x
            --- BRIDGET OREILLY <brdgtoreilly@...> wrote:

            > got ur e-mail i already had the site theres loads
            > about it lol
            >
            > arnablarna <arnablarna@...> wrote: Just
            > typed adie's syndrome into Yahoo and came up with
            > this site.
            >
            > I'm 28 year old woman. I was diagnosed with Adie's
            > about 6 or 7 years
            > ago. My specialist at the hospital told me what it
            > was. Literally that
            > is all. I asked the causes and implications and she
            > just shrugged and
            > said no one really knew. There was NOTHING on the
            > net at the time
            >
            > So apart from the headaches and a slightly freaky
            > looking eye and the
            > usual visual impairments you would expect, I've
            > pretty much forgotten
            > about it.
            >
            > Should I be worried about deterioration? Should I be
            > doing something
            > else? Do doctors know more about it now and would it
            > be worth going
            > back to get something for the headaches? Or shall I
            > just leave well
            > alone
            >
            >
            >
            >
            >
            >
            >
            >
            >
            > SPONSORED LINKS
            > Article health wellness Center for health
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            > and wellness job
            >
            > ---------------------------------
            > YAHOO! GROUPS LINKS
            >
            >
            > Visit your group "adie_syndrome" on the web.
            >
            > To unsubscribe from this group, send an email
            > to:
            > adie_syndrome-unsubscribe@yahoogroups.com
            >
            > Your use of Yahoo! Groups is subject to the
            > Yahoo! Terms of Service.
            >
            >
            > ---------------------------------
            >
            >
            >
            >
            >
            > bridget
            >
            > Send instant messages to your online friends
            > http://uk.messenger.yahoo.com




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