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  • Sara M. Novelli
    http://www.thewho.com/index.php?module=news&news_item_id=427&utm_source=feedburner&utm_medium=feed&utm_campaign=Feed%3A+TheWhoNews+%28The+Who+News%29 The sixth
    Message 1 of 1 , Jun 8, 2010
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      The sixth International Conference on Teenage and Young Adult Medicine
      > kicked off today with the launch of a global campaign to protect the rights
      > of young people with cancer and establish them as a distinct medical group.
      > Teenage Cancer Trust�s longstanding celebrity patron, The Who�s Roger
      > Daltrey CBE, encouraged people across the globe to support the International
      > Charter of Rights for Young People with Cancer by signing online.
      > In the UK, six people aged 13-24, are diagnosed with cancer every day, in
      > the US that figure is nearly 200 per day. Teenage Cancer Trust studies have
      > shown in the UK that young people revisit GPs an average of 5 times before
      > symptoms are recognised or taken seriously. Globally, teenagers also miss
      > out on vital clinical trials by research systems arranged around age,
      > leaving them forgotten in the middle of children and adult age groups and
      > lagging behind in survival rates. The international community also agrees
      > these patients face a lack of resources such as psychosocial therapy and
      > fertility preservation.
      > Set up by five cancer charities across the world, Teenage Cancer Trust in
      > the UK, CanTeen Australia, CanTeen New Zealand, and LIVESTRONG and SeventyK
      > in the USA, the Charter is a global initiative recognising teenagers and
      > young adults have specific needs that differentiate them from children and
      > adult medicine. The charities believe these differences deserve to be
      > acknowledged by the medical world, and identify ten key rights they want to
      > see awarded to young people diagnosed with cancer worldwide.
      > Roger Daltrey CBE, Teenage Cancer Trust Patron said, "I've been working
      > with Teenage Cancer Trust for 10 years and we don't just talk about change,
      > we make it happen. Quality cancer care for this age group should be a right
      > and not a privilege. For a teenager, dealing with cancer is frightening
      > enough but being taken away from your life and friends makes it more
      > frightening. This situation has to change. We believe teenagers with cancer
      > shouldn't have to stop being teenagers. Thanks to Teenage Cancer Trust,
      > Britain leads the world in the treatment of teenagers with cancer. Now we
      > need the world to catch up."
      > Hannah Merridale, 25, was diagnosed with a Carcinoid Tumour in her right
      > lung at 18 after spending over five years going back and forth to her GP.
      > She said, �I started feeling really breathless when I was 13, but my GP said
      > it was asthma. It got worse to the point where I had a constant stabbing
      > pain in my chest yet they still told me it was just asthma. Five years later
      > I got really ill and spent four months visiting my doctor every week until
      > he eventually gave in to my pestering and sent me for a chest x-ray. The
      > x-ray showed that my right lung had collapsed, and by the time I saw a
      > consultant the collapsed part had died. All this time I had a large tumour
      > growing on my lung, and as a result I�ve had two thirds of it removed.�
      > Professor Mike Richards, UK National Cancer Director, said, �I absolutely
      > agree that teenagers and young adults should be recognised as a distinct
      > medical group with specific needs. Teenagers and young adults fall between
      > paediatric and adult medicine and because of this are under represented in
      > medicine and research. Early diagnosis and detection is vital for improving
      > survival rates for all age groups, so I whole heartedly support this Charter
      > of Rights for young people with cancer in raising awareness of the issues of
      > cancer and cancer care for young people across the world.�
      > Teenage Cancer Trust leads the world in the treatment of teenagers with
      > cancer, building state-of-the-art units for this age group in UK NHS
      > hospitals. In the US, SeventyK and LIVESTRONG are committed to advocacy,
      > outreach and education of the issues that affect many young people, as
      > defined by the National Cancer Institute. Down under, CanTeen in Australia
      > and CanTeen in New Zealand have become the largest supporter and service
      > provider for young people with cancer.
      > *The International Charter of Rights for Young People with Cancer * - *
      > www.cancercharter.org* <http://www.thewho.com/www.cancercharter.org>
      > *We are neither paediatrics nor geriatrics; we have unique needs -
      > medically, developmentally, socially, and economically. We have the right to
      > have these unique needs recognised. Like all age groups, we deserve to have
      > our dignity, our beliefs, our privacy and our personal values respected.
      > Regardless of financial, familial, ethnic or other background, access to
      > quality cancer care and age-appropriate support is a right, not a privilege.
      > Young people with cancer have the right to� *
      > * 1. Receive education about cancer and its prevention including early
      > detection.*
      > * 2. Be taken seriously when seeking medical attention and receive the
      > earliest possible diagnosis and speedy referral for suspected cancer. *
      > * 3. Have access to suitably qualified multi-disciplinary medical
      > specialists with significant experience in treating cancer in this age
      > group. *
      > * 4. Information about and reasonable access to clinical trials and
      > treatment that has been clinically trialled with people in their age group.
      > *
      > * 5. Receive age-appropriate support including, but not limited to,
      > psychosocial, community and palliative support services.*
      > * 6. Empowerment in making decisions supported by full and detailed
      > explanation of all treatment options and long-term effects of the disease
      > enabling them to actively influence their care.*
      > * 7. Fertility preservation, as well as information and counseling
      > concerning short-term and long-term effects of cancer and treatment which
      > affect fertility. *
      > * 8. Have access to specialised treatment and services in age-appropriate
      > facilities alongside their peers. *
      > * 9. Financial and practical support to minimise the burden of the disease
      > during treatment.*
      > * 10. Elimination of all forms of discrimination, during and beyond
      > treatment, in education, vocation and insurance, or in the community.*
      > Teenage Cancer Trust�s groundbreaking Conference on Teenage and Young Adult
      > Cancer Medicine will run from 7-9 June 2010, at the Royal Society of
      > Medicine, London. This is the sixth international conference organised by
      > Teenage Cancer Trust and is the only one of its kind in the world. The
      > conference attracts delegates and speakers from around the globe, enabling
      > health professionals to learn about recent developments in cancer for this
      > age group and to share information and best practice. It has become known as
      > the must-attend conference for those working in the field of adolescent
      > cancer.
      > For more information please contact Teenage Cancer Trust:
      > shree.rajani@...


      "Life moves pretty fast. You don't stop and look around once in a while, you
      could miss it."

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