Re: [Tracheostomy_infants] Tricia :)
Gracie had a oral teratoma discovered in utero.It was
a serious tumor very rare that blocked her oral cavity
and her airway. The tumor filled her mouth not letting
her palate form properly so it was more absentee.
So far she is doing great since decannulation.
I passed the poem to some of her specialists in
--- Caughlin3 <caughlin3@...> wrote:
> Tricia, wow skyler and gracie are close in age? he_______________________________
> was two in august. she also had a cleft palate? so
> did skyler :) what is oral teretoma and auditory
> dysncrony? I asume it has something to do with
> hearing loss?? talk to yousoon. I really thiought
> the poem should be shared with the other groups as
> they/we all know what its like :) hang in there.
> Casie mom to Skyler 2, PRS SS Trach Gtube Glaucom
> Hypotonia Repaired Palate Repaired
> Hypospadious...Crazy man!!
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