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First Tracheostomy.com Pediatric Conference

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  • Cynthia Bissell
    First Tracheostomy.com Pediatric Conference, St. Louis, Missouri, June 3-5, 2004 WOW!!! What a fabulous weekend. So much about this conference impressed me.
    Message 1 of 4 , Jun 9, 2004
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      First Tracheostomy.com Pediatric Conference,
      St. Louis, Missouri,
      June 3-5, 2004

      WOW!!! What a fabulous weekend. So much about this conference impressed
      me. First and foremost, Ann and Karen did a super job organizing this
      event. Everything went so smoothly, a nice combination of learning,
      networking, support and fun. All of the speakers were excellent. It was a
      thrill for me to meet Dr. Cotton. He is a very nice man, with a great sense
      of humor. I was also quite impressed by the parents of children who are
      ventilator dependent. Having a child with a trach is challenging enough,
      but adding a vent into the picture is a whole lot more work and stress! I
      was also happy to see so many dads in attendance.

      I have gotten so much support and inspiration for networking with parents
      on-line via email, listservs and message boards over the years, but meeting
      people face-to-face is truly something special. It was nice to be at a
      place where people have a real understanding of what parents of kids with
      special needs deal with on a daily basis. And for parents of kids with
      tracheostomies, this was an extra-special gathering. Where else can you go
      where the sound of a suction machine is hardly even noticed? Or where you
      can actually grab the wrong suction machine to suction your child! :-)
      Every time a vent alarm sounded, you had to look around at the many
      vent-dependent children to see who actually needed attention.

      As I have said many times, information is important, but knowing you are not
      alone is often most helpful. As a parent of three children with special
      needs, I have found networking with other parents of children with special
      needs vital to keeping ones sanity! It is the parents of children with
      tracheostomies who have made Aaron's Tracheostomy Page so successful, by
      sharing your children's stories, participating on the listservs and posting
      to the message boards.

      Aaron and I had the time of our lives and we would like to thank all of you
      for your positive feedback regarding Aaron's Page. Your kind words make all
      of the work worthwhile. I have returned with a renewed sense of purpose and
      lots of ideas to make tracheostomy.com even better! Thank you also for the
      beautiful plaque, which I will treasure for the rest of my life. Thank you
      to all who contributed to this very special gift. Thanks also to Scott for
      donating cherry stool, which made a lovely door prize for a lucky
      grandparent of a child with a trach.

      For those interested, I have posted some of my photos at:
      I will also be adding a conference section to Aaron's Page soon.

      Cynthia Bissell
      Aaron's Tracheostomy Page
    • nikiprincess23@aol.com
      Those pictures were great!!!!!!!!!!!11 NIKI
      Message 2 of 4 , Jun 9, 2004
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        Those pictures were great!!!!!!!!!!!11
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