Just re-introducing myself...
- Hello, my name is Haily and my youngest son's name is Gage. He has
had a tracheostomy since July, 2001. He is going to be 2 on
Valentine's Day. He had to have the trach done because of an injury
to his airway following laser surgery for ROP. He was 3 months early
and had a difficult time of it in the nicu, respiratory wise. I am
looking forward to getting to know everyone! This is a wonderful
group and I am grateful to be back. If I can ever do anything for any
of you, please let me know. My email address is
trachmom@.... Feel free to visit our website too. Thank you
Haily & Gage (20 Months)
former 28 weeker & present "trachkid"
website address - http://www.trachkids.com
My name is Sabrina, I pulled my son's story out of the archives for you to read:
Jeshua's Trach ~ July 10, 2002
Hello. My son, Jeshua, is now 13 months old. He had his trach since Aug.
2001. He was born at 28 weeks had alot of respiratory problems, suffered a
stroke a 7 days old. He had a hernia repair 2 weeks before the
trachoestomy. The doctors had to intubate him after the hernia repair, and
they believe that somewhere in between in- or extubating him the tubing
scratch his airway and caused massive swellng which in turn made him a
candidate for the trach. It was rough at first but now it comes as second
nature handling his trach care. The older he gets the worse he fights. Some
days are better than others but in the end he is a happy camper.
That was four moths ago, now he is 17 months and he actually looks like a one year. I just joined the site when I wrote the above, and it has been so encouraging to me, to know that I am not alone in this. And thank you for sharing your son's story. And cystic hygromas is a new term to me. What is it exactly?
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