Re: So Quite
Sunshine had an eye operation cancelled due to the RSV risk, they've had five deaths already and the hospitals are full, even with some full-term infants. Is anyone else struggling to get their baby immunized? I have to fight tooth and nail to get that shot every month!
She's not allowed in the same room as Tay and Lissa, she's in the isolation ward at the care center, and we're not letting any visitors into the bedroom, where she spends most of her time. Not much of a life for an eight month old, I'm afraid, but hopefully we will be able to get out and about more by the time she is a year old. Am I being optimistic, or is it possible to actually have a get-out-and-about life and a trach infant at the same time?
Overall I guess she's doing pretty well. She had a slight fever yesterday, and mommy was in a panic, but it is gone today, maybe not even a fever, just a little warm. Haven't even tried oral feedings on this little one, tried once after she left the hospital while she was in the care center, and she didn't do well.
Tay is doing well on baby foods. He takes infant cereal and juice from a cup at breakfast, yougurt and sometimes fruit (pureed) for lunch, and occasinally he'll take something for dinner (oatmeal with cinnemon is a favorite). Of course the kid would have a sweet tooth, he loves ice cream and will even tolerate popsicles
We're using Pediasure for tube feedings right now, sometimes he will drink it orally but it must not taste as good as ice cream (it's certianly more expensive! WIC provides ours at this point). He hates milk! We've even tried chocolate and strawberry milk, no way mommy!
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Glad to hear all is going well. Yes, RSV is bad everywhere. Thank god we have not had to
deal with it yet. Lauren is suppose to have the trach out late March, however depending
what the hospital looks like with RSV and Flu, we may hold off until middle April or
beginning of June. I am really wanting it out. She is trying to vocalize now and even
with the valve, it breaks my heart she can't get out what she wants to.
We just went a month without any weight gain. We are stuck at 14 lb 8 ounces.
She is a string bean. In the last few days, she has refused her feedings, however
I have been able to get about 18 ounces of milk in her. We are still playing with
baby foods, however she hasn't took to the spoon thing yet.
I am getting ready to feed her now. She still has the days and nights switched,
so it has been rough.
Take care, Tammy
- You really can have an out and about life...I promise:) We packed all our
stuff up and spent the night at grandma's house over the weekend, first time
since Eli was born. It was great! You have to take more precautions but the
good news is that as she gets older and actually does get sick a few times,
she'll build up that immune system and also be able to manage her secretions
better, even if she is sick.
Tamiko, mom of Eli, 2 & a half w/achondroplastic dwarfism and trach