- Hi all,
I haven't written in a while, but my son came home
from the hospital on Aug. 15. He was trach'd on June
28, his 5 month birthday. He is scheduled to go to
the hospital and have a bronchoscopy on Tuesday. The
pulmonologist said there is a chance that they will
remove the trach at that time. He is currently eight
and a half months old. How common is it for a trach
to be removed this soon? I'd love to see it happen,
but don't want to get my hopes up. He has subglottic
stenosis. He has never been bronch'd before. His
condition was too critical at the time they did the
tracheostomy. Any comments??
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Without knowing more about your son, I would definately say that do NOT go in there expecting a decanuation. Be careful about even hoping. He is quite young to be decanulated. Many of us could tell you about disappointment. I think we just have learned to be realistic instead of hopeful. I do pray that the bronch goes well and things have improved in your son's airway.
mom to Daniel 19m. Born at 27 weeks. Bilateral Vocal Cord Paralysis--> Trach and G-Tube 6/1/2000. Subglottic Stenosis, VP Shunt, Nissen Fundo.
(and Joseph 5, Eric 4)