Anyone need medical supplies?????????????????
- Hi, My son was decanulated in April after a year and a half with a trach,
vent and nurse 16-24hrs a day. It has been a very long road with 2 open
heart surgeries, and all of the complications from those led us to a trach
and gtube and 8 mos in the PICU out of his first year! But we have survived
(somehow!). We were VERY lucky to have a very generous insurance company
who basicly gave us whatever equiptment I requested (or demanded :o) ). We
ended up with A TON of medical supplies, which we had intended to donate,
using the tax write off to pay for some of our outstanding medical bills.
However, after having 2 amazing accountants research the tax laws, unless we
get an apraisal (costing $4000.00) we can only donate a max of $5,000.00
worth a year. We have about $20,000.00 of supplies and no room to store it
all. I know that many who have trached children/loved ones have to buy a
lot of these supplies and was wondering if any of you would be interested in
purchasing them from me! You would get a deal and we could get out from
some of these bills. I have a very long list that includes lots of vent
pieces, disp. vent tubing, suction tubing, trach masks(for O2), 8 fr sxn
caths (1500 of them-- NO JOKE-- 1500!!), dale trach ties (infant size), 3.0
NEO, 3.5PED, 3.0PED trachs, O2tubing, 600 Gibeck HME's, 6 passy muir valves,
tons and tons of syringes, GTubes (MIC-KEY and others), feeding bags, gauze,
..............the list goes on and on and on. If you dont see what you use
here, EMAIL ME-- we probably have it!! Everything is BRAND NEW! IN STERILE
PKGS!! This is a very short list!! Please email me if you are interested in
anything, I am hoping to get all of this stuff out of my house very soon!!!
Best wishes to you all, and THERE IS LIGHT AT THE END OF THE TUNNEL. It
gets easier, you get into a routine, you learn ways to figure out how to
have a *normal* life, and you look at your child every single day and thank
God that you are able to do what needs to be done for your baby. The
laundry will pile up, your husband and you will argue, you will get 2 hours
of sleep every night for a week, (in 15 minute increments because the pulse
ox/apnea monitor keeps going off), you will hate the nurses in your home--
or wish that you HAD nurses in your home.........and you will survive. YOU
WILL SURVIVE. Email me at: matthewandleanna@...
mama to Alec, 2�, Tetralogy of Fallot/DORV, pacemaker, asthma, and WILD!!!
:o) Post: Tracheostomy, Vent, GTube
Please join us again next year in remembering all those affected by CHD on
2/14/2001: "A Day for Hearts: Congenital Heart Defect Awareness Day!"
***Be willing to accept joy in the face of adversity***
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