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The TRPSA is a national & international support network for people with Trichorhinophalangeal Syndrome; a skeletal disorder. People with TRPS suffer more than physical challenges; they often encounter discrimination & ridicule. We offer understanding, friendship & information. We recommend learning all you can about TRPS; this enables you to be your own best advocate. Part of our mission is to promote TRPS awareness within medical communities & develop a treatment protocol. If you or a loved one has TRPS; you've come to the right place. You're not alone anymore. Through this group, & with the help of researchers we now have much more information about TRPS management. With each new member we learn more. If you have a TRPS diagnosis, please join & share your experiences with us. (Disclaimer: The range of symptoms experienced by members varies greatly.) We recommend medical decisions be between you & your doctor. Treating physicians are welcome. Membership is carefully screened & approved by the group moderator only. Insurance agents or curiosity seekers aren't allowed to join due to privacy & rules of the group. Harvesting email addresses is forbidden; anyone doing so will be banned. We've worked hard to create a very private, secure website to protect our members. Content on this list comes from a multitude of resources & represents many years of research. Copyright ©2003 all material is the intellectual property of Trichorhinophalangeal Syndrome Association a.k.a TRPSA. All rights reserved.
- Diseases and Conditions
- Oct 3, 2003
- This is a restricted group.
- Attachments are not permitted.
- Members cannot hide email address.
- Listed in Yahoo Groups directory.
- Membership requires approval.
- Messages require approval.
- All members can post messages.