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This is a group for anyone in South California interested in reaching out to others with Porphyria. Although I'm the group owner I do not live there but started the group for a friend who will be the main moderator and eventually group owner. Porphyria is a mystifying and frustrating disease that CAN be managed with the help and support of others who have had experiences that they are willing to share. You are not alone!
- May 13, 2004
- This is a public group.
- Attachments are permitted.
- Members cannot hide email address.
- Listed in Yahoo Groups directory.
- Membership does not require approval.
- Messages are not moderated.
- All members can post messages.