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Group Description

This is a group for anyone in South California interested in reaching out to others with Porphyria. Although I'm the group owner I do not live there but started the group for a friend who will be the main moderator and eventually group owner. Porphyria is a mystifying and frustrating disease that CAN be managed with the help and support of others who have had experiences that they are willing to share. You are not alone!

Group Information

  • 46
  • Porphyria
  • May 13, 2004
  • English

Group Settings

  • This is a public group.
  • Attachments are permitted.
  • Members cannot hide email address.
  • Listed in Yahoo Groups directory.
  • Membership does not require approval.
  • Messages are not moderated.
  • All members can post messages.

Message History