The emphasis in this group is on people with the more severe form of M.E. or progressive M.E. ie. Those who are bedbound, housebound, or wheelchair bound - or very close to it. (ie. You can leave the house once a month or less, and are out of bed less than 3 hours a day.) Anyone who has (or cares for someone with) this degree of severe M.E. is welcome.
This is a group that cares about challenging the myths about 'CFS' and ME and isn't prepared to accept how things are now; where people with ME are abused/neglected etc. You wont hear the same old 'I have a miracle cure for CFS' and 'oh I am just so tired!'and 'FM/Lyme/Candida is pretty much the same illness' and 'CFS is helped by exercise isn't it?' and 'aren't the CDC doing a great job to help us now?' stuff here! We know that knowledge is power and that debunking these myths is really important. You'll be sent the group's new M.E. Manifesto when you apply for membership, please read and evaluate it carefully!
BUT: Anyone thinking of joining just to talk about an 'amazing miracle treatment' that 'cures' 'CFS' - please don't! Basically, if you've come up with an easy answer, you have NO IDEA what the actual question is. Genuine members only please.
PLEASE also ignore ALL the silly ads for 'fatigue' treatments on this site they are NOT vetted or recommended by this group in any way.
Note: It is important to be aware that M.E. and CFS are not synonymous terms. See What is M.E.? for more information on all aspects of Myalgic Encephalomyelitis.
- Neurological Disorders
- Oct 3, 2006
- This is a restricted group.
- Attachments are permitted.
- Members cannot hide email address.
- Not listed in Yahoo Groups directory.
- Membership requires approval.
- Messages require approval.
- All members can post messages.