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Family Stories section on the GFPD website

Would you like to share your child(ren)'s story with other families and/or those who visit the GFPD website? We have a very special "Family Stories" section on
Sep 6, 2013

You still have time to register for the 2013 GFPD Conference!

Message from Shannon Butalla, GFPD President For those still considering coming to the conference, the group rate at Embassy Suites has been extended. You can
Jul 9, 2013

Have you submitted your child(ren)'s mutations to the GFPD Family Re

If you have had your child(ren)'s mutations identified -- meaning you know the exact mutations -- not just what PEX gene they are located in, and have not
Jun 14, 2013

Have you registered for the GFPD 2013 Family & Scientific Conference

Just as a reminder: We are closing in on the final days of early registration pricing for the GFPD Conference in Lincoln, NE this July. Please be sure to
May 25, 2013

Seeking pictures of "our" kids for two upcoming events

Hi, friends! Next month we will be holding our 2nd Annual Pancakes for PBD-ZSD event. Last year I had pictures of our kids on all of the tables so that those
Apr 11, 2013

GFPD 2013 Conference Information

Important information from GFPD Treasurer, Melissa Gable Hello friends! I have just loaded all of the 2013 GFPD Family & Scientific Conference information onto
Mar 4, 2013

Please help us keep all families impacted by PBD-ZSD connected.

Hello everyone: My name is Pamela Marshall and I am the Registry and Support Group Coordinator for the Global Foundation for Peroxisomal Disorders (GFPD). GFPD
Dec 31, 2012

Global Foundation for Peroxisomal Disorders (GFPD) Newsletter

If you would like to receive GFPD's newsletters and haven't already shared your email and/or mailing addresses with us, please visit our website to sign up and
Nov 28, 2012

Tell Congress to Protect the NIH & FDA from Devastating Budget Cuts

All, Please read below. If you click on the link, you can write a paragraph or so adding your personal story to the information already put together. It will
Shannon Butalla
Nov 9, 2012

FW: Happy Holidays from TolmieToffee!

Hey All, Please see information below. The proceeds are coming to GFPD. J Shannon From: ian tolmie [mailto:tolmie@...] Sent: Tuesday, November 06, 2012
    Shannon Butalla
    Nov 6, 2012
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    Re: GFPD October 2012 Newsletter

    If you didn’t get the newsletter today, be sure to email Pamela Marshall (registry@...) to ensure you are added to the list. J The Global Foundation
    Shannon Butalla
    Oct 11, 2012

    Natural History Study Update - August 31, 2012

    Greetings everyone, All of the information about the Natural History study is now available on the GFPD website -
    Aug 30, 2012

    Re: Natural History Study on PBD

    Hi Pamala, Sorry I am very behind in my emails. We will certainly participate in the study and if you still need someone from South Atlantic with Classic ZS
    Kitty Goffaux
    Aug 26, 2012

    video link

    I was asked to share the 2012 Conference video that I created from the photos you submitted prior to the conference. You can access it by following this link:
    Shannon Butalla
    Aug 7, 2012

    Thank you & post conference survey

    Greetings GFPD Families! It is hard to believe that the 2012 GFPD Family Support Conference has come & gone. With a year of preparation, Melissa and I hope
    Shannon Butalla
    Aug 7, 2012
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