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added in the last 7 days

Group Description

Support for parents caring for children affected by Pelizaeus-Merzbacher Disease.

PMD It's Rare But Everywhere.

Surprise, you're not alone!

This is a place where parents caring for boys/men affected by this rare disease can post stories about their sons, share problems, ask questions, offer suggestions, helpful hints, etc.. We hope you find it helpful!

We also welcome those of you who may have lost your PMD son/sons.

Patti and George Daviau
Parents of three PMD sons, all now in Heaven.

Group Information

Group Settings

  • This is a restricted group.
  • Attachments are permitted.
  • Members cannot hide email address.
  • Listed in Yahoo Groups directory.
  • Membership requires approval.
  • Messages are not moderated.
  • All members can post messages.

Message History