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Re: [PF_Support_Group_India] (unknown)

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  • Sonal Yadav
    hi geeta thanks for your reply . my father is in hardwar ( uttarakhand).and he is getting his treatment there only. We went to delhi also and some other places
    Message 1 of 5 , Nov 5, 2010
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      hi geeta
      thanks for your reply . my father is in hardwar ( uttarakhand).and he is getting his treatment there only. We went to delhi also and some other places also. some specialist also see him but right now he is in hardwar and getting treatment there. He was first diagnosed in may 2008 . He went for a vacation to badrinath, kedarnath yatra . if you are aware of that places so he has to climb up the hill to worship the God. but he was not able to walk there and the whole time they are there he was not feeling well. after coming back to hardwar the Dr give him the the diagnosis of pulmonary fibrosis. after that he starts medicines . he is feeling fine just he has cough all the time and whenever he has to climb stairs or someplace steep he feels exhausted. his condition starts to worsen in winters of 2009. he starts o2 that time but only for little time. now he is full time but still he is not feeling ok.he has some medical conditions with him other than this.he was a cancer patient( thyroid cancer). that is 20 yrs back and he is fine after that and also heart patient (1995 first attack). now his sugar is also increasing . he has lost his appetite and interest in everything .
        geeta where do you live and how did you diagnosed? how old are you?

      Thanks & Regards
      Sonal Yadav

      --- On Fri, 10/29/10, Geeta Vasudev <gita1_v@...> wrote:

      From: Geeta Vasudev <gita1_v@...>
      Subject: Re: [PF_Support_Group_India] (unknown)
      To: PF_Support_Group_India@yahoogroups.com
      Date: Friday, October 29, 2010, 2:55 AM

       

      Dear Sonal,
      I am very sorry to hear about your father's illness and can understand your worry and anxiety.we can give you moral support and also infomation to some extent so I would like more details .
      Where is your father at present? where does he go for treatment.?when and how was he diagnosed?what is the treatment he is getting?Since he is already on o2 why is he weak and shiver?
      Do you have an oximeter to check his saturations.?
      please send me the details so that I can help you.
      I am on o2 24/7 since 5 years and I am still able to do my day to day activities. so please be optimistic and also encourage you parents to be so.
      Regards
      Geeta

      --- On Thu, 10/28/10, yadav_sonal <yadav_sonal@...> wrote:

      From: yadav_sonal <yadav_sonal@...>
      Subject: [PF_Support_Group_India] (unknown)
      To: PF_Support_Group_India@yahoogroups.com
      Date: Thursday, October 28, 2010, 8:54 PM

       
      my dad is diagnosed PF 2 yrs back. he is now on oxygen 24 hrs still he is not feeling better. his hand and feet becomes blueish.last week he has to be admitted in the hospital because his whole body start to lose control and start shaking . he has lost his apetite and willness to live. we are three sisters . i am in US and my other two elder sisters are in india but they are not near by . so they can'nt come frequently. my mom is the only one taking care of him alone. i feel so bad that we can'nt do anything to ease his problems .



    • Geeta Vasudev
      Dear Sonal, Thanks for your reply. I am Geeta V Shirahatti, 61 yrs old , residing in New Bombay , i have IPF  and was diagnosed in 1995 and I have been on O2
      Message 2 of 5 , Nov 10, 2010
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        Dear Sonal,
        Thanks for your reply.
        I am Geeta V Shirahatti, 61 yrs old , residing in New Bombay , i have IPF  and was diagnosed in 1995 and I have been on O2 since 2005. You can get all the details from the group pages.
        Your father does have multiple problems but this is common in most PF patients.
        What is the treatment followed by his doctor?
        I am on steroids right from the beginning , now I take 15mg of prednisone.
        Does he have an Oximeter? he must keep his saturations in 90's so that he is not breathless and also to protect the other imp. organs.
        He must first consult a good pulmonologist to be in proper. hands , he may not find qualfied specialists in Hadrwar so he can come to Delhi go to AIMMS or any teaching  hospital and get a proper diagnosis , this disease cannot be cured , but can be managed to live a decent but limited life.
        you please join our mother group  Breathe- Support @... you will get a wealth of information.You can also talk to me on the phone  and my long experience may be of use to you.
        Do not be despondent , please encourage your father.
        Even in this condition I do the cooking   at home . I have also travelled to the US 2 yrs back.
        Do keep in touch
        regards
        Geeta

        --- On Fri, 11/5/10, Sonal Yadav <yadav_sonal@...> wrote:

        From: Sonal Yadav <yadav_sonal@...>
        Subject: Re: [PF_Support_Group_India] (unknown)
        To: PF_Support_Group_India@yahoogroups.com
        Date: Friday, November 5, 2010, 11:36 PM

         
        hi geeta
        thanks for your reply . my father is in hardwar ( uttarakhand).and he is getting his treatment there only. We went to delhi also and some other places also. some specialist also see him but right now he is in hardwar and getting treatment there. He was first diagnosed in may 2008 . He went for a vacation to badrinath, kedarnath yatra . if you are aware of that places so he has to climb up the hill to worship the God. but he was not able to walk there and the whole time they are there he was not feeling well. after coming back to hardwar the Dr give him the the diagnosis of pulmonary fibrosis. after that he starts medicines . he is feeling fine just he has cough all the time and whenever he has to climb stairs or someplace steep he feels exhausted. his condition starts to worsen in winters of 2009. he starts o2 that time but only for little time. now he is full time but still he is not feeling ok.he has some medical conditions with him other than this.he was a cancer patient( thyroid cancer). that is 20 yrs back and he is fine after that and also heart patient (1995 first attack). now his sugar is also increasing . he has lost his appetite and interest in everything .
          geeta where do you live and how did you diagnosed? how old are you?

        Thanks & Regards
        Sonal Yadav

        --- On Fri, 10/29/10, Geeta Vasudev <gita1_v@...> wrote:

        From: Geeta Vasudev <gita1_v@...>
        Subject: Re: [PF_Support_Group_India] (unknown)
        To: PF_Support_Group_India@yahoogroups.com
        Date: Friday, October 29, 2010, 2:55 AM

         
        Dear Sonal,
        I am very sorry to hear about your father's illness and can understand your worry and anxiety.we can give you moral support and also infomation to some extent so I would like more details .
        Where is your father at present? where does he go for treatment.?when and how was he diagnosed?what is the treatment he is getting?Since he is already on o2 why is he weak and shiver?
        Do you have an oximeter to check his saturations.?
        please send me the details so that I can help you.
        I am on o2 24/7 since 5 years and I am still able to do my day to day activities. so please be optimistic and also encourage you parents to be so.
        Regards
        Geeta

        --- On Thu, 10/28/10, yadav_sonal <yadav_sonal@...> wrote:

        From: yadav_sonal <yadav_sonal@...>
        Subject: [PF_Support_Group_India] (unknown)
        To: PF_Support_Group_India@yahoogroups.com
        Date: Thursday, October 28, 2010, 8:54 PM

         
        my dad is diagnosed PF 2 yrs back. he is now on oxygen 24 hrs still he is not feeling better. his hand and feet becomes blueish.last week he has to be admitted in the hospital because his whole body start to lose control and start shaking . he has lost his apetite and willness to live. we are three sisters . i am in US and my other two elder sisters are in india but they are not near by . so they can'nt come frequently. my mom is the only one taking care of him alone. i feel so bad that we can'nt do anything to ease his problems .




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