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Calls to Congress - Rosa's Law (quick and easy advocacy - please share!)

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  • Alpy2@aol.com
    Hi, all! This is from Jessica Butler, long time advocate and mom of a child with a disability. Legislation has passed the US Senate ( Rosa s Law ) that
    Message 1 of 1 , Sep 21, 2010
      Hi, all!  This is from Jessica Butler, long time advocate and mom of a child with a disability.  Legislation has passed the US Senate ("Rosa's Law") that would eliminate the use of the "R" word ("retarded") with the less loaded term of "intellectual disability."  We believe this change would help eliminate the stigma currently associated with the "R" word, and this law would cost NO money to implement (see details below).
      If you agree, please make a quick call to your U.S. (federal) representative (see instructions below), and please share - thanks! (The Senate has passed this bill but the US House still needs to - if it's not passed before the end of the legislative term, the process will have to start all over again from the beginning in the next term.)
      As the year winds down, we've all talked and debated many important policy matters.  You've heard a lot about restraint/seclusion/aversives, and you will be hearing more about legislation regarding these dangerous techniques.  We've all called Congress about recovering expert witness fees, Buckhannon, unlevel playing fields, and woefully inadequate educations that do little to prepare children with disabilities to succeed (much less go to college or earn a living). 

      But as you sip your morning coffee, tea, or Mountain Dew, I'd like to try to convince you to make one more call to Congress-- a short call for human dignity.  The Senate has passed Rosa's law (S.2781), a bill to replace "mental retardation" in our federal laws with "intellectual disability."  Now, it’s time to ask your Representative to do the same (see instructions below).

      Maybe this isn’t as big a deal as all the other kinds of legislation.  But as WE know, "retarded" is used as a slur, demeaning and denigrating to 6 million adults and children in America.  The stereotypes associated with the “R” word connote the slamming door of "can't" more than the hopefulness of  "can" which encourages people to teach children with intellectual disabilities to succeed.  Even some of our archaic restraint/seclusion practices are premised on outdated stereotypes that children with intellectual disabilities cannot understand anything else. 

      Eliminating the "R word" may not cure the stereotypes, but it will help bring society closer to realizing that people with intellectual disabilities are part of all of us.  Of course, it’s hard to eliminate it when our core disabilities laws use it. Nearly 1/2 million children with IEPs are categorized as “mentally retarded.” 

      S.2781, Rosa's Law, would change all of this. It will replace “mental retardation” and “mentally retarded” with "intellectual disability" in our federal laws. These include the Individuals with Disabilities Education Act, Elementary and Secondary Education Act (the law formerly known as No Child Left Behind), Rehabilitation Act, Public Health Service Act, Health Research and Health Services Amendments and a number of other health and disability laws.  S. 2781 will also update federal regulations.

      Some people think this bill is silly or wasteful; many of us do not.   It's about dignity for people with intellectual disabilities.

      Rosa’s Law will not impact services, rights or educational opportunities for people with intellectual disabilities.  It just replaces one phrase with another; everything else stays the same.  It will not cost any money.  Federal Regulations and Statute Prints will be updated on the same schedule they always are.  The bill will not force states to change their own laws if they do not want to. Rosa's Law is a bipartisan bill, it was cosponsored by Senators Mike Enzi (R-WY), Richard Burr (R-NC), Barbara Boxer (D-CA), Barbara Mikulski (D-MD), and 40 other Senators from both parties.  The Senate passed the bill last month and sent it to the House.

      But now the legislative session is winding down.  To make S. 2781 a federal law, the House of Representatives must pass it.  If the House does not, we start all over again next year.....from the very beginning.

      INSTRUCTIONS FOR CALLING YOUR REPRESENTATIVEPlease take 5 minutes and call your Congressional Representative. Ask him/her to support S.2781.  Dial 202-224-3121 (TTY 202-225-1904).  Ask for the aide who handles disability or health care.  If you get voicemail, please leave a detailed message. You can also find direct dial numbers on your Representative’s webpage at http://www.house.gov .  If you do not know who your Congressional Representative is, go to http://www.house.gov and put your zip code into the box in the upper left corner.   (You usually only need your five digit zip code, even though it asks for 9.)

      It is much much better to make a call, because Congress is so busy in the final weeks that reading email will be delayed.  If you cannot call due to disability or other severe constraints, please send an email but perhaps ask a friend to also make a call. Email can be sent through http://www.house.gov/writerep .

      Everyone should call your own Representative.  But it’s particularly important to call your Representative if he/she is on the House Education and Labor Committee (see http://edlabor.house.gov/about/members/ for a list of members) or House Energy and Commerce Committee ((for a list of members, go to http://bit.ly/dfws6B or go to http://energycommerce.house.gov/  and click on About and then Members) or in the House leadership.  Energy & Commerce handles the federal health laws, which Rosa's bill will also update.  If your Representative is on Energy & Commerce, please ask for the Energy & Commerce aide.  Tell this aide this is why the Committee has the bill and ask them to support it.  Both committees must approve the bill to send it on to the full House.     

      Perhaps Rosa’s Law is a small change, but it is one that will say a lot about our national cultural attitude toward people with intellectual disabilities.  Updating our federal laws will not eliminate stereotyping or low expectations for children with intellectual disabilities, but it is a step in the right direction.  It’s a way to make sure America’s laws stand up for human dignity rather than archaic terms.

      More info on the web: S.2781, Rosa’s Law in full: http://www.govtrack.us/congress/bill.xpd?bill=s111-2781 .
      Statement of Senator Mikulski (D-MD), Sen. Harkin (D-IA) and Sen. Enzi (R-WY) upon introducing the bill:

      I wish you a great week.  I hope you’ll join me in taking 5 minutes out to call your Congressional Representative and ask him/her to pass S.2781, Rosa’s Law.  It’s a simple bill and an easy call to make.  You have all you need above.  If you agree with me, make a call and send this message on to 5 friends (or 20 or 50).

      It's a step for Human Dignity.


      Jessica Butler
      Congressional Affairs Coordinator
      Autism National Committee (www.autcom.org)
      Former Chair, COPAA Board of Directors (2007-08)
      permission to forward is freely granted.

      Sandy, Illinois (alpy2@...)
      Our Children Left Behind (http://www.ourchildrenleftbehind.com) (volunteers protecting special needs students through legislative and policy advocacy-join us!)
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