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Group Description

This mailing list is dedicated to those that are affected by Opsoclonus-Myoclonus Syndrome. It's to share treatment options, experiences and general support.

PLEASE BE AWARE that this yahoo group is not as active as it used to be. Regular and ongoing discussions have moved to a facebook page: OMSLIFE: Opsoclonus Myoclonus Support Group at https://www.facebook.com/groups/229786860371566/

We strongly encourage you to connect there (it is a closed group, but send in a request to be added with brief info on why you want to be a member, and you will be added. That is currently the most active online group for families with a member suffering from OMS, and is a very supportive group. If you are not on facebook, it is probably worth setting up an account just to be a part of this page.

This list does not provide medical advice or direction. The information provided is the personal experience of members or member families. All medical decisions regarding your own or your child's care should be carefully researched and discussed with your medical team.

Group Information

Group Settings

  • This is a restricted group.
  • Attachments are permitted.
  • Members cannot hide email address.
  • Listed in Yahoo Groups directory.
  • Membership requires approval.
  • Messages are not moderated.
  • All members can post messages.

Message History