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Group Description

Oregon Lyme Disease Network Patients (OLDN) Yahoo groups was set up to help Lyme patients, and their caregivers. Please note that anything on this forum does not necessarily reflect the opinion of OLDN and any medical discussion should be reviewed with your treating physician.

We accept all patients but please note there are CA and WA only specific groups and we recommend you include CA and Washington groups if you live in CA or Washington as we dont recognize all factors that affect CA and Washington patients.
We also serve Idaho patients until Kathy gets the Idaho network up and running.

A recent Oregon Survey shows:
70% of the patients who responded in our survey were on ADA

75% of the patients had changed from full time status to part time or unemployed status due to lyme disease of themselves or a family member.

22 patients responded as primary symptoms were headaches, stiff neck and myalgia.(common lyme disease symptoms) Of those only 10 were diagnosed in Oregon and 6 were overturned by Infectious Disease phsysicains. All of them had previous diagnosis of either ALS, MS or Fibromyalgia, and an average of 6.1 specialty doctors were seen prior to being diagnoses with lyme disease. 19 of the 22 are seeing out of state physicians, the other four are not getting treatment due to geographical/financial issues. 11 are CDC positive by Western Blot, 7 are CDC positive by ELISA, and 4 are positive by PCR (DNA test for lyme disease spirochetes).

This online forum serves to complete the gaps for the state face to face support groups, keeps everyone up to date on support group meetings and also will help to serve as a question/answer board for lyme disease and lyme disease related issues.

Oregon Lyme Disease Network addresses different aspects of lyme disease and works closely with Washington and California to help create a West Coast community aware

Group Information

  • 133
  • Lyme Disease
  • Jun 29, 2005
  • English

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  • This is a restricted group.
  • Attachments are permitted.
  • Members cannot hide email address.
  • Listed in Yahoo Groups directory.
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  • Messages require approval.
  • All members can post messages.

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