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Group Description

This is for people who have given birth or are known to have the genetic condition that causes thrombocytopenia in their fetus during pregnancy. This is a support group and a place to share information about current treatment options.

I am PLA-1 or HLA-1A and was diagnosed with the birth of my son. He did have a severe hemmorage in his brain but is a walking miracle. He is currently 10 years old and the joy of our lives. :)

Because of this group and the courageousness of all the other parents and their support we had Jason in May 2008 who is currently 2 1/2 and healthy :) I had treatemnt fron 11 weeks and IVIG 2 times a week with prednisone. Jason was born premature at 32wks 5 days.

NAIT
Neonatal alloimmune thrombocytopenia
FMAIT
foeto-maternal alloimmune thrombocytopoenia

PLEASE, AS WITH ALL INFO OFF THE INTERNET, CHECK WITH YOUR DOCTORS IF YOU HAVE ANY QUESTIONS AND BRING ALL INFORMATION YOU FIND TO YOUR HEALTH CARE PROVIDER. ANY AND ALL DECISIONS ABOUT YOUR HEALTH CARE NEED TO BE DECIDED ON BETWEEN YOU AND YOUR DOCTORS.

baby, low platelets, thrombocytopenia

Group Information

  • 779
  • Reproductive
  • Dec 22, 2002
  • English

Group Settings

  • This is a restricted group.
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