Explaining Myopathies / Disability to a Child
- Hello Everyone
I am working on the next issue of the Information Point newsletter and it has been suggested to me that I write something about how to explain to a young child about their myopathy, to help them understand it in a way they can explain it to others if they want to.
There are a couple of sources of information that I always direct people to when asked about this, namely http://www.mda.org/publications/nobody/ and http://www.listentoourstories.com/index.htm but for the article it would be good to hear from parents too about methods and resources they have used or from adults who remember how their own parents / carers / teachers dealt with this issue.
Would love to hear from anyone who thinks they could help and wouldn't mind being quoted in the newsletter online.
Thank you everyone.