Re: [Myotubular_Myopathy] new person
- HelloWelcome to the group.My name is Toni - my father and I are diagnosed with autosomal dominant centronuclear myopathy. You can read our story at http://www.centronuclear.org.uk/theinformationpoint2010/pages/share_a_story/adults/toni_and_mike.html.I don't recall seeing any information about Ronnie here previously. What form of the condtion does he have?You may find the following pages useful:ToniFrom: Ron Martin <hdwideopen@...>Sender: Myotubular_Myopathy@yahoogroups.comDate: Thu, 24 Jun 2010 11:46:40 -0700 (PDT)To: <Myotubular_Myopathy@yahoogroups.com>ReplyTo: Myotubular_Myopathy@yahoogroups.comCc: my new acc is<hdwideopen@...>Subject: [Myotubular_Myopathy] new personi sent info on ronnie feuer ok to use i'm his dad not real good on the laptop but tryin to help with info
- Hi there Ron!! Welcome to our family. My son Luke is 2 1/2 and has x-linked MTM. We live in southern CA. You should join Facebook. Numerous families are on there and we talk in that forum about anything and everything almost daily. If you should have any questions don't hesistate to email me. How old is Ronnie? Where do you live?
--- In Myotubular_Myopathy@yahoogroups.com, Ron Martin <hdwideopen@...> wrote:
> i sent info on ronnie feuer ok to use i'm his dad not real good on the laptop but tryin to help with info