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Re: [Myotubular_Myopathy] Flying with a Vent

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  • Sally Eubanks
    That s very useful--thanks!!  i had forgotten about US Airways.  More research! ... From: Betsy Grant Subject: Re: [Myotubular_Myopathy]
    Message 1 of 4 , May 19, 2009
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      That's very useful--thanks!!  i had forgotten about US Airways.  More research!

      --- On Tue, 5/19/09, Betsy Grant <betsy@...> wrote:

      From: Betsy Grant <betsy@...>
      Subject: Re: [Myotubular_Myopathy] Flying with a Vent
      To: Myotubular_Myopathy@yahoogroups.com
      Date: Tuesday, May 19, 2009, 1:04 PM

      When I was looking into booking flights to Houston, I came accross this as well.  So far, the only airline I am aware of that has this policy (power off the vent while in flight) is Continental.  We have flown on JetBlue (a small airline here) and US Airlines with no issue in the past.
      To simplify things for us, I've found it best to use a travel agent, inform them of your exact needs, and let them do the leg work.  Challenge the agent with any information they come back with, and do your own research at the same time.  Using the travel agent increases the travel costs, but we think it's worth the added peace of mind. 
      I'd hate to think of being on board and having someone tell me to turn the vent off.  Bring an Ambu-bag!
      Hope this helps!
      -Scott (Betsy's husband)

      On Tue, May 19, 2009 at 1:21 AM, Sally Eubanks <sallyeu@yahoo. com> wrote:

      Hi Families--

      I assume, since the Houston conference is coming up, that you've all thought about and/or dealt with this issue. If things weren't so complicated for us, I'd be looking forward to coming myself!

      The question is, most of the European airlines were telling me that Oscar's vent would have to be turned off during takeoff and landing. So I'm looking at traveling to the US from Austria with either American or United, but I have to actually book tickets with them before I'll get an official answer from their medical teams. American already said the vent was ok, but has anyone been told this before about turning the machines off? After so many refusals I'm starting to get nervous, even though both American and United were positive with me on the phone. (I just want to move home already!!)

      Thanks a million
      Sally (and Marco, and Oscar)

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