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Re: [Myotubular_Myopathy] Great news!

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  • WANDA SANTORY
    I m so happy to hear the great news Sarah. Tell him to keep putting on the weight and he ll keep getting stronger. ________________________________ From:
    Message 1 of 9 , Jan 8, 2009
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      I'm so happy to hear the great news Sarah. Tell him to keep putting on the weight and he'll keep getting stronger.


      From: patsarah2006 <patsarah@...>
      To: Myotubular_Myopathy@yahoogroups.com
      Sent: Thursday, January 8, 2009 12:59:34 PM
      Subject: [Myotubular_Myopathy] Great news!

      I took Adam for scoliosis follow up today and we had great news. His
      curve is improved 5 degrees (which is the same as the allowance for
      measurement error, meaning it's basically the same). Anyway, it's
      stable, which is great.

      He also had his blood drawn for DNM2 testing today. We'll hear back
      within the next 6 weeks.

      Adam gained 4 pounds and 2 inches in the last 6 months - which is
      fantastic!

      So far we have been very healthy during this cold/flu season and I hope
      this healthy streak continues!!

      Wishing all of you health and good news, too (especially those of you
      whose kids are in the hospital now.)

      Best,
      Sarah


    • Betsy Grant
      That is such wonderful news, Sarah! Yeaaaa! Bets
      Message 2 of 9 , Jan 9, 2009
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        That is such wonderful news, Sarah! Yeaaaa!
        Bets

        On Thu, Jan 8, 2009 at 12:59 PM, patsarah2006 <patsarah@...> wrote:

        I took Adam for scoliosis follow up today and we had great news. His
        curve is improved 5 degrees (which is the same as the allowance for
        measurement error, meaning it's basically the same). Anyway, it's
        stable, which is great.

        He also had his blood drawn for DNM2 testing today. We'll hear back
        within the next 6 weeks.

        Adam gained 4 pounds and 2 inches in the last 6 months - which is
        fantastic!

        So far we have been very healthy during this cold/flu season and I hope
        this healthy streak continues!!

        Wishing all of you health and good news, too (especially those of you
        whose kids are in the hospital now.)

        Best,
        Sarah


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