Re: [Myotubular_Myopathy] Chicago Fundraiser Sept 21
Thanks for the invite, Sarah. We'd love to go, but regretfully, we must decline. [No moolah for the traveling :( ]
I hope this is a great success!!!Connie & Richard Guinn----- Original Message ----
From: patsarah2006 <patsarah@...>
Sent: Friday, September 5, 2008 11:33:05 AM
Subject: [Myotubular_Myopathy] Chicago Fundraiser Sept 21
I want to invite anyone who is interested to a fundraiser for MTM/CNM
research to benefit Dr. Alan Beggs at Children's Hospital Boston. The
event is a brunch held on an Odyssey cruise off of Navy Pier, Chicago.
It is Sept 21 from 11:00 - 2:00 PM.
There are going to be several families there affected by MTM/CNM
(including Pat, Adam and myself).
We have discovered that some of our mailed invitations did not arrive
at their destination so I wanted to post a general invite.
I uploaded all the details under the "files" section to the left.
To order a ticket please contact Mark or Michelle Huang (hosts) at
I would really LOVE to see you there! Sarah