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Re: [Myotubular_Myopathy] Chicago Fundraiser Sept 21

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  • Connie Guinn
    Thanks for the invite, Sarah.  We d love to go, but regretfully, we must decline.  [No moolah for the traveling :( ]   I hope this is a great success!!!
    Message 1 of 2 , Sep 5 10:18 AM
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      Thanks for the invite, Sarah.  We'd love to go, but regretfully, we must decline.  [No moolah for the traveling :( ]  

      I hope this is a great success!!!
       
      Connie & Richard Guinn


      ----- Original Message ----
      From: patsarah2006 <patsarah@...>
      To: Myotubular_Myopathy@yahoogroups.com
      Sent: Friday, September 5, 2008 11:33:05 AM
      Subject: [Myotubular_Myopathy] Chicago Fundraiser Sept 21

      I want to invite anyone who is interested to a fundraiser for MTM/CNM
      research to benefit Dr. Alan Beggs at Children's Hospital Boston. The
      event is a brunch held on an Odyssey cruise off of Navy Pier, Chicago.
      It is Sept 21 from 11:00 - 2:00 PM.

      There are going to be several families there affected by MTM/CNM
      (including Pat, Adam and myself).

      We have discovered that some of our mailed invitations did not arrive
      at their destination so I wanted to post a general invite.

      I uploaded all the details under the "files" section to the left.

      To order a ticket please contact Mark or Michelle Huang (hosts) at
      mandmhuang@sbcgloba l.net

      I would really LOVE to see you there! Sarah


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