Re: [Myotubular_Myopathy] Family Get Together
- Hi Scott,
Yes, the Family Conference is being scheduled for 2009, and will likely be held in the Houston area. Updates will be sent out once concrete details have been ironed out and established. Thanks for asking!
Connie----- Original Message ----
From: Scott & Staceyanne Fontana <masonsparents@...>
Sent: Monday, June 30, 2008 12:10:24 PM
Subject: [Myotubular_Myopathy] Family Get Together
I just wanted to check in and see how the plans are coming for the MTM
family get together. I thought I had read somewhere that this was
planned for Houston in 2009??