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Re: [Myotubular_Myopathy] Adam's in the PICU

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  • debbie mccluskey
    Our Prayers are with Adam and your family. Debbie M. ... From: Pat or Sarah <patsarah@optonline.net> Subject: [Myotubular_Myopathy] Adam s in the PICU
    Message 1 of 9 , Jun 6, 2008
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      Our Prayers are with Adam and your family.

      Debbie M.

      --- On Thu, 6/5/08, Pat or Sarah <patsarah@...> wrote:

      From: Pat or Sarah <patsarah@...>
      Subject: [Myotubular_Myopathy] Adam's in the PICU
      To: Myotubular_Myopathy@yahoogroups.com
      Date: Thursday, June 5, 2008, 5:40 AM

      Hi guys.  Adam went in to the ER on Tuesday and was later admitted to the PICU.  He as has a virus with fever, vomiting, headache, etc. and it just wiped him out.  He got dehydrated and his blood got very acidotic.  He was then got ketones in his blood (burning fat due to low blood sugar) which continued to make him nauseous.  We thought he might come home yesterday but when they stopped his IV fluids he wilted.  I expect him to be discharged today.  He is at St. Barnabas hospital and althought they know nothing about CNM, his vent or his Cough Assist machine, they are very nice.  I'll let you know when he comes home.  Sarah

    • Sheallyn
      My thoughts are with you guys Sarah ... email me if ya need anything, even just to vent ;) take care xoxoxox to Adam
      Message 2 of 9 , Jun 6, 2008
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        My thoughts are with you guys Sarah ... email me if ya need anything,
        even just to vent ;)


        take care

        xoxoxox to Adam
      • Steven Pepi
        Sarah - glad to hear Adam is home!!! We will keep him in our thoughts and prayers!!! Best Regards, Steven -----Myotubular_Myopathy@yahoogroups.com wrote: -----
        Message 3 of 9 , Jun 6, 2008
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          Sarah - glad to hear Adam is home!!!  We will keep him in our thoughts and prayers!!!



          Best Regards,

          Steven 

          -----Myotubular_Myopathy@yahoogroups.com wrote: -----

          To: Myotubular_Myopathy@yahoogroups.com
          From: Pat or Sarah <patsarah@...>
          Sent by: Myotubular_Myopathy@yahoogroups.com
          Date: 06/05/2008 06:40AM
          Subject: [Myotubular_Myopathy] Adam's in the PICU


          Hi guys.  Adam went in to the ER on Tuesday and was later admitted to the PICU.  He as has a virus with fever, vomiting, headache, etc. and it just wiped him out.  He got dehydrated and his blood got very acidotic.  He was then got ketones in his blood (burning fat due to low blood sugar) which continued to make him nauseous.  We thought he might come home yesterday but when they stopped his IV fluids he wilted.  I expect him to be discharged today.  He is at St. Barnabas hospital and althought they know nothing about CNM, his vent or his Cough Assist machine, they are very nice.  I'll let you know when he comes home.  Sarah



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